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Keep in touch with what is going on at Pseudomyxoma Survivor.  If you have something you wish to share, please do not hesitate to contact us.

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  1. Pseudomyxoma Survivor's new logoYou may have noticed that our website and logo has had a bit of a facelift. 

    Our logo with the orchid is much loved by us here at Pseudomyxoma Survivor but we knew that it needed some rework but were unsure what exactly what was required.  British Design Experts quickly provided us with some concepts within our brief and helped us to solidify our requirements.  After looking at the initial ddesings, we knew what it was that we wanted and we pretty quickly got to it.


    If you are looking for a quick turnaround and a professional approach, then that is what we have received from British Design Experts; patience, despite our numerous tweaks to the design.  With grateful thanks and hopes that we may work together in the future.


  2. Today's guest blogger is Stacey who tells us why she and Antje took part in The Gauntlet.

    Pseudomyxoma SurvivorWe did it!

    We ran THE GAUNTLET 5.8k race at Mucky Races!

    Considering it had snowed only the week before, the weather was kind to us.  It was sunny but fresh.  However, it also meant the water along the course was very high and also very cold so our nerves were showing a little.  Well, mine were as it was my first time taking part in a Mucky Races event, Antje seemed quite calm about it all having ran a 'Guts and Glory' event previously.   We all gathered for a warm-up to music organised on the day then progressed to the start line.

    muckygirls1We're off!

    The first thing was to run past Spains Hall,  Elizabethan country house near Finchingfield in Essex, and I have to say, it's absolutely beautiful.  This was the civilised part of the race, it got seriously mucky from here on in.  Next up, running through the woods and scrambling over ditches.  All pretty dry so far...

    Then we got to the lake.  We all took it in turns to wade through the edge of the lake with water up to our waists.  Antje and I decided we'd hold hands through all the tough obstacles and it was a good tactic as it was pretty slippery.  After another run through the grounds and out into the countryside, we came to a stream where some locals had set up a little spot in the sunshine, enjoying a pint and a giggle at the crazy muddy people trekking past their house.  We could really have done with a pint at this point! Ha ha!

    Our task was to 'run' across the stream then on to the obstacles the other side.  We had to balance along a beam, go under a rope cargo net then 'hop' through a load of tyres.  All energy sapping stuff.  More running then on to a deep ditch.  We had to cross it so many times I lost count! It was so deep sided and by this point as so many people had trundled through it, was so slippery getting out of either side that Antje and I stopped for ages helping out other ladies who were also stuck.  It wasn't the most glamorous of situations to be in, we're all covered in mud being pushed and pulled all over the place, but I've never laughed so much.  It was brilliant! 

    Getting mucky for Pseudomyxoma SurvivorAfter the ditches came the wall. It was a series of huge hay bales towering over six foot.  After more pushing and pulling and a few leg ups we got ourselves and others up and over and then on to more running through the woods.  Then the mud pit. This part of the course was SO muddy, we sank down past our knees the second we tried to walk on it. So crawling it was then! At this point we were starting to be lapped by the crazy 12k runners. As so many people had passed through the mud pit before us, it had got so bad the course guides advised we crawled around the edges. A few people were now stuck in the middle of the pit and I think they were seriously considering having to pull people out by a rope!  Several people lost shoes at this point but Antje and I had taped ours to our feet. 

    More lakes, more pits, more ditches and more nets to crawl under until the final obstacle.  The raft.  It was floating on a pond that was about waist height and we had to dive under it through the muddy water.  It was quite disorientating and SO cold it took your breath away.  We were both so proud of ourselves for doing it though. A final push took us to the finish line looking wet and bedraggled but surprisingly clean after our little dip.  Yay, we did it!  Participants were given a goody bag and a t-shirt (which I now wear with pride at bootcamp) and we trundled back to the car to dry off, warm up and refuel.  Exhausted and bruised but happy.

    We dedicated our sponsorship to Pseudomyxoma Survivor as our lovely friend Claire has been fighting PMP for some time.  We felt that although there are so many deserving charities out there and many people pick a large well known one, this one was close to our hearts and Pseudomyxoma Survivorwe wanted to raise as much awareness as we could. The support and friendliness of Pseudomyxoma Survivor has been so important for Claire and as there is so little aid or awareness of this type of cancer we felt we just had to help in any way we could. What better way than to get MUCKY?!

     - Stacey. x

    Getting mucky for Pseudomyxoma Survivor

    if you would like to make a donation, please visit Stacey and Antje JustGiving page.

  3. With several upcoming conferences to attend, we recognised that id badges would be very useful but were unsure what exactly what we were looking for.

    Ashley at PPS ID Bureau has been an absolute dream to work with. She has listened to our requirements and quickly provided us with designs making any necessary amendments in a timely and supportive many.  Ashley has also become an ardent supporter of our charity, helping us spread a little bit of awareness of this rare disease.
    Extremely helpful and very pleasant to deal with providing a professional approach.  With grateful thanks to Ashley and hopes that we may work together in the future.

  4. As you may know, Julie was lucky enough to secure a place in the London Marathon 2013 and kindly volunteered to run in support of Pseudomyxoma Survivor.  As if this wasn't enough, Julie also established and co-ordinated the Pseudomyxoma Survivor Marathon Challenge 2013 where she encouraged us to run, walk or crawl a marathon in whatever timme was a personal challenge.  Julie has been amazing thoughout, enthusing us and the children at the school where she teaches and producing amazing progress charts for us to share.  Julie tells us about her marathon challenge:

    Julie shares her marathon story with Pseudomyxoma SurvivorThe last several months leading have been quite the journey and I have loved almost every minute. I admit that I find my new love for running quite strange as this time last year I never, ever had the desire to run more than 10km; that was painful enough.

    Julie shares her marathon story with Pseudomyxoma SurvivorMy husband decided that it would be funny if he signed me up for the marathon ballot as he was entering himself, this remained secret until October of 2012 when he got his commiseration letter and I didn’t. Instead I got a letter of congratulations. I can’t even put into words how I felt about this except that I felt as though I had just had my car towed. I had no idea what I was going to do. I certainly wasn’t excited or grateful for my wonderful surprise. I had time to think about withdrawing or deferring my spot for 2014, I knew deep down neither was an option as it wasn’t fair to the people who really wanted to do it (like my hubby) and I knew in 2014 I would feel the same way. I came across a quote that helped me make my decision:

    Excuses are always there.....opportunities aren’t

    From that moment, I knew I was going to do this even if it killed me.

    I started my training in January under the direction husband and believe it or not, we still actually love each other. Through the weeks, I slowly increased my mileage and after several weeks, each long run was a milestone for me. Every time I went that bit further I became more and more proud and wanted to go further. I realised I had never really had enough faith in myself to push my limits. I am so pleased that this journey has made me realise the only way for me to realise my true potential is to try. I have loved the fact that I have been able to run slowly and not have to make excuses for it. Now when people pass me on the roads, I quietly say to myself, “I bet they are not running as far as me today”.  I have been looking forward to each and every run. People are right when they say running is the cheapest form of therapy. Each run gave me time to think about anything and anyone, time to myself, peace and quiet and just a chance to appreciate the world around me, and what a great place it is. I always feel on top of the world when I am done.

    Strangely as race day approached (way quicker than I had hoped) I felt calmer and more and more excited. I think this was because I visualised this day in my head so many times. I saw myself running with a smile, with my special little angel on my shoulder encouraging me to keep going. I envisioned my smile getting bigger with every passing mile. Oddly, this is exactly how the “race” played out. The morning of the race I had an aura of peace around me; everything went smoothly from travelling up to the race, to checking in my bags, and finding where I needed to start. Once I got there, there was nothing left to think about but just to take one step at a time, have fun and finish the race. I won’t lie, even though I enjoyed EVERY second of the race there were moments where I got really emotional and a bit choked up. I just couldn’t believe that I was actually doing the race and enjoying it.

    Looking at all the charity shirts over the 26.2 miles made me realise how many stories of heartache, pain, joy and happiness there is out there, and this gave me that much more motivation to give it my all. It was such a beautiful day and the crowds helped to fuel the fire within, especially when I saw my hubby Matt at Mile 11 and Mile 24 with TEAM PMP (Dawn, Kirsten, Megan, Angela, Sarah and Jenny).  This gave me that extra boost to get me to the end. I was so unbelievably touched that they all travelled up to London to cheer me on, especially when I had never met most of the team before. I was going to finish strong for them.

    It wasn’t long until I saw the finish line in the distance, 800m, 600m, 400m, 200m I could feel myself starting to bubble over with excitement as I was nearly there. I crossed that line with so much pride for myself. I was on top of the world and I didn’t want that moment to end.....EVER!! Sadly it has, but I have fond memories of the day and yes......I would do it all again in a heartbeat!! Best experience ever and I am so glad to have chosen such a special charity and special people to run for.

    Would I do it again?? ABSOLUTELY, YES!! I was the only runner for Pseudomyxoma Survivor, but all it takes is one person to make a little difference. If you haven’t already, please can you make a small donation to http://www.justgiving.com/topmp.Julie shares her marathon story with Pseudomyxoma Survivor

    - Julie

    We would like to take this opportunity to say a mahoosive thank you to Julie for all she has done in supporting Pseudomyxoma Survivor and raising awareness of pseudomyxoma peritonei.  You can find out more about Julie's marathon challenge here and show your support on her JustGiving page.