Keep in touch with what is going on at Pseudomyxoma Survivor.  If you have something you wish to share, please do not hesitate to contact us.

Subscribe to the Pseudomyxoma Survivor blog by e-mail

Surviving with PMP

Posted on


Pauline, from our support group, shares this:

Pauline shares her tale of survival with Pseudomyxoma PeritoneiWhen I was first diagnosed in 1999, no one at QMC Nottingham (where I worked, on the very ward on which I had my operation) had ever seen this before.

The pathologist brought in especially gave it a name - PMP. There was no information, no glossy pamphlets, no specialist nurses, no web site, NOTHING. I felt very alone and frightened but got through my operation in Basingstoke thanks to Brendon Moran and his wonderful team.

I had just lost my husband to CJD IN 1998, so had to "go it alone " when I had my operation. I made my will, made arrangements for my funeral, even bought a dozen pairs of glam PJ's as I had no-one to do my laundryPauline shares her tale of survival with Pseudomyxoma Peritonei.  I never wore them, I lived in hospital gowns and I was home in less than two weeks. Things are so much better now, PMP is not a life sentence. Never give up hope.

Add a comment:

Leave a comment:


Add a comment