Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer….
This illness sucks but I’m embracing the moment
read more
Coping With PMP articles
Lisa takes part in a photoshoot
Following the Loose Women Body Stories campaign, Lisa took part in a photo shoot organised by The Sun newspaper. We caught up with her and talked to her about the shoot and raising awareness of pseudomyxoma peritonei.
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.
Who Cares for our Carers?
Putting on a brave face, offering support, keeping strong and then crying into their pillows at night, who cars for our carers?
Helping Children Cope with a Parent’s PMP Diagnosis Part 2
When discussing PMP with your kids, keep it simple and age-appropriate. Focus on reassurance, love, and answering their questions honestly.
Helping Children Cope with a Parent’s PMP Diagnosis Part 1
Apis shares her ideas for supporting children through a parent’s diagnosis with PMP. The answer is never easy and these are ideas that worked for her family.
Surviving with pseudomyxoma peritonei
When I was diagnosed in with PMP in 1999, there was no information, no glossy pamphlets, no specialist nurses, no web site, NOTHING.