I am finally getting round to informing you all of my recent visit to West Yorkshire & Harrogate Cancer Alliance. We were invited by Cancer 52 and the meeting was a great and informative one.
West Yorkshire & Harrogate Cancer Alliance
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Patient Advocacy articles
Multi-disciplinary Diagnostic Centres
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a one-stop shop and have all of the tests they require to help with a diagnosis.
PSOGI 2018
Pseudomyxoma Survivor representatives once again attended the bi-annual Peritoneal Surface Oncology Group International (PSOGI) conference, this time it was in Paris. The PSOGI aims to “improve the treatment and survival of peritoneal cancer patients by educating patients, by training physicians, by organizing meetings and by performing basic and clinical scientific research into peritoneal cancer and the different treatment modalities”.
PMP Patients’ Meeting – Dr Paul Sugarbaker
Pseudomyxoma Survivor is proud to have sponsored the recent PMP Patients’ Meeting which was held in Basingstoke in May 2013. The first meeting of its kind in the UK, attendees heard sessions from Dr Paul Sugarbaker and patient advocates Amani Albedah, Dave Mason and Dawn Green as well as attending breakout sessions which covered a range of topics.
EURORDIS Summer School for Patient Advocates in Clinical Trials and Drug Development
Catherine jetted off to Barcelona on June 17th to wave the pseudomyxoma peritonei flag at the EURORDIS Summer School.
Cancer 52 House of Lords Meeting
Dawn attended an inspiring Cancer52 meeting at the House of Lords, with UK’s National Cancer Director, Sir Mike Richards.
Canadian Organisation for Rare Disorders (CORD) in Toronto, 15/16th Sept 2011
Some of you may already know that I was recently invited as a guest speaker at a conference hosted by the Canadian Organisation for Rare Disorders (CORD) in Toronto.