Complementary and Alternative Therapies Poll

Join the nearly 2,000 people that voiced their opinions about the use of complementary & alternative therapies in the management of rare diseases by responding to this short #RareBarometer survey. By taking part, you will be contributing to the report for pseudomyxoma peritonei.

Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.


Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in Norfolk, has brought our two charities together.

Pseudomyxoma Research

Pseudomyxoma Survivor is pleased to announce a £3,500 donation to support the research work of Mr Andrew Renehan and Professor Peter Stern in the Paterson Laboratories, at the Christie Hospital, Manchester. Briefly, the project to date has successfully grown PMP cells...

Cancer Research UK Conference

Dawn was given the honour of presenting a speech at a conference hosted by Cancer Research UK in Birmingham, UK. Her presentation was about overcoming adversity and was aimed at delegates to inspire their fundraising efforts for their Relay for Life committees.