Dr Arona Sanchez from Cordoba tells us about an exciting new trial for patients experiencing a recurrence of PMP.
Photo credit: Hellerhoff, CC BY-SA 3.0, via Wikimedia Commons
Research articles
The Biology of pseudomyxoma peritonei (PMP)
Pseudomyxoma Survivor is supporting exciting new research into the biology of pseudomyxoma peritonei.
Cancer biomarkers in the era of personalised medicine
As part of our commitment to research and to supporting cancer patients, we are inviting you to take part in the European Cancer Patient Coalition (ECPC) Survey on biomarker testing.
Estimating the incidence and prevalence of pseudomyxoma peritonei in Europe
Researchers have recently published some new figures on the number of people affected by pseudomyxoma peritonei (PMP) in Europe.
EuroPMP International Workshop on pseudomyxoma peritonei
In December, Susan and Angela have been asked to present at the EuroPMP International Workshop on pseudomyxoma peritonei. It is a privilege to be asked to present to this network of experts from many fields, including surgeons, pathologists, oncologists, radiologists, molecular biologists, bioinformaticians and allied health care professionals of which Angela is a participant.
ERNs: Lend your support to the UK’s continued involvement
The voice of rare disease patients in Europe, EURORDIS, is supporting the Genetic Alliance UK’s #ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. How can you help?
Donate tissue sample – US patients
Calling US patients: Do you have an upcoming surgery or an ascites drain scheduled in the United States?
If so, please consider donating your excess tissue for an important research project. The ACPMP Research Foundation has partnered with Pattern.org to enable patients to donate their excess tissue or fluid to the Cancer Cell Line Project at the Broad Institute of MIT and Harvard.
An evidence-based approach
The BMJ defines evidence-based medicine as:
“the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients”
It’s a constantly evolving definition and at Pseudomyxoma Survivor, we always look for scientific evidence to back up suggested treatment plans for pseudomyxoma peritonei (PMP) and appendix cancer patients.
Gearing up for PSOGI 2018
The PERITONEAL SURFACE ONCOLOGY GROUP INTERNATIONAL conference, now in its 11th year, is almost upon us. I can't quite believe it's been two years since we attended the one in Washington DC! PSOGI is a non-profit organisation which aims to promote research, education,...
Update from our Chair
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....
Supporting the Peritoneal Malignancy Institute in Basingstoke
We got the day off to a great start at the Patients Wellbeing Day in Basingstoke by making a donation to the Peritoneal Malignancy Institute. This donation was made specifically with the help of the Leighton family and friends. Thank you!
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.