Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer….
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I actually represented an organisation and wasn’t there as a lone survivor of a rare disease!
My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them.
Dawn was someone who everyone thought they knew – cancer ambassador, selfie queen – but to us, the two people who really knew her, she was simply Mum.
On March 1st 2016, I was admitted to hospital with abdominal pain and operated on the next day. The surgeon found a tumour in my appendix and mucin throughout my abdomen. My story is about what happened next, my surgery, coping with the stress and the positives that came out of it.
So much of what you read online about the disease focuses only on the severity of the illness, and this can be terrifying for patients. I think it’s really important that people with a PMP diagnosis are given positive messages – because the fact is, you can survive and indeed thrive after pseudomyxoma. Raising awareness of this fact is just as important as raising awareness of the disease itself, I reckon.