Pseudomyxoma survivor at the Eurordis Black Pearl Gala Dinner2014

Elke, Kirsten, Dawn, Angela, Katie, Farrah and Megan

We were extremely privileged to be invited to this year’s Eurordis Gala Dinner held in Brussels on 25th February.  The event was a prestigious affair, attended by many distinguished guests and is one of the highlights of European Organisation for Rare Disorders’ events to mark celebrations for International Rare Disease Day, which is held on the 28th February annually (or indeed the 29th February on each leap year).

We were also thrilled to be joined by a very special guest in Mr Sean Hepburn Ferrer, son of Audrey Hepburn, who sadly passed from PMP 20 years ago.  Sean Hepburn Ferrer has been of great support to the charity, liaising personally with our CEO Dawn Green, and has been awarded the post of ambassador for Eurordis following Dawn’s invitation to the post earlier last year.

We feel that by attending this event and working closely both with Eurordis and Sean Hepburn Ferrer, we are further highlighting our awareness raising efforts and bringing pseudomyxoma peritonei to a both a European and wider International platform.

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