Fay shares her story
I was extremely lucky in my case as the PMP was only picked up on an ultrasound scan I was attending for an overactive bladder. There was a shadow the doctors initially thought was a cyst. Following appointment after appointment at Clatterbridge Hospital and Arrow Park Hospital to diagnose this, CT scans showing the cyst getting bigger with each scan and a final scan showing fluid in my pelvis, the doctors thought I had a burst cyst. An MRI scan showed the fluid still there after 2 months where it should have been absorbed by then should it have been a cyst. I was finally referred to The Christie Hospital in Manchester where straight away doctors diagnosed it as PMP. I was told I would need a full hysterectomy as well as gall bladder, appendix, tissue behind my abdomen scraping of my liver and maybe bowel all removed and then a hot chemo rinse (HIPEC).
Having just turned 28 with no children yet, I chose to keep my womb and my left ovary and underwent hormone treatment and had my eggs frozen before to the operation.
The operation was successful and I cannot thank team at the Christie and my amazing family enough for their skill hard work and on-going support, It was so strange being told I was going to need surgery when I felt fine! I was so lucky it was caught so early on in an unrelated scan!!!
I was up and out of hospital after a week and a half and went on to run my first marathon in 2014! I am a year and a half into my 5 year follow up stretch, where I have a CT scan every 6 months to ensure the PMP does not return.
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Misdiagnosed with ovarian cancer
On November 30, 2009 Megan went to Northside Hospital, Cherokee, with severe abdominal pain. After hours of testing and exams, she was admitted to do further testing. Megan’s abdomen was swollen to the point that the doctors, had they already not tested for pregnancy, said that she looked to be about five to six months pregnant.
I didn’t have endometriosis, I had PMP
My story began a few months after I got married. My first symptom was the sudden onset of intense pain while I was at work one day. After a few hours, the pain subsided but I decided to make an appointment with my family doctor a few days later.
This is me 100 percent. I was pregnant with my very first child during it all!!!