My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them. He just told me that he wrote about me and how well I dealt with my operation and chemotherapy afterwards.
He doesn’t talk much about what we went through but when he does he surprises me how much it really affected him. He was only eight. Be brave, everyone, no matter what stage you are at with this dreadful disease.
In case you missed it...
I was misdiagnosed by my first surgical oncologist
The recommendations from the people in the support group are because they care. The decisions we make are literally life and death.
MOAS – It’s not a race
Take your time, there’s no rush, go at your own pace and don’t feel pressured to be at a certain stage, just because someone else is. You’ll get there, in your own time, be happy still to be breathing and above ground……..
Marilyn’s Story
When my doctor told me what he had discovered during surgery for a suspected ovarian tumour, I could barely pronounce the words let alone understand what it might mean for me.
My wife Susmita Roy also diagnosed pseudomyxoma peritonei low grade. Earlier doctor told benign after surgery and removal of reproductive organs. Wait and watch, doing ct & marker tests on recurring go for cytoreductive surgery with HIPEC. She undergone this on 16 March 2018, now after ICU going to Room for next few days before discharge, looking for post-surgery treatment, care to get over recovery and complete cure. Jayant Roy Mumbai India, advice awaited.
We have no idea about how extensive the impact felt by families (& friends) is, especially for the young, when a close member has endured this MOAS operation. It must be so traumatic for them too. Being brave ..and resilient is hard. Your son is justifiably proud of you & how wonderful that he does open up to you – this is an important message to all who are going through this terrible experience.