Links

other resources you may find useful

Cancer52 represents 80 predominantly small cancer charities united by their vision of seeing a better future for everyone affected by the rare and less common cancers,  which account for more than half of all cancer deaths in the UK.

http://www.cancer52.org.uk/

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe....

The NET Patient Foundation was established to provide support, education and information to anyone affected by neuroendocrine cancers, advocate for neuroendocrine cancer patients so they may achieve the best possible outcomes, to encourage standardised care for all...

The aim of the Northern Ireland Rare Disease Partnership (NIRDP) is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.

Pelican Cancer Foundation is dedicated to curing and improving quality of life for patients with bowel cancer (colorectal cancer), prostate cancer, bladder cancer and liver cancer through the advancement of precision surgery and treatment. Pelican delivers professional courses for cancer surgeons and cancer specialists from across the UK and throughout the world and supports vital clinical research into the development of pelvic area and liver cancer precise detection, diagnosis, treatment and cancer surgery pathways.

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