Links

other resources you may find useful

Cancer52 represents 80 predominantly small cancer charities united by their vision of seeing a better future for everyone affected by the rare and less common cancers,  which account for more than half of all cancer deaths in the UK....
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe....
The NET Patient Foundation was established to provide support, education and information to anyone affected by neuroendocrine cancers, advocate for neuroendocrine cancer patients so they may achieve the best possible outcomes, to encourage standardised care for all NET cancer patients, to provide supportive care to patients and their carers or family members, to raise awareness of NET cancers throughout the UK and to raise funds for clinical and translational research projects....

The aim of the Northern Ireland Rare Disease Partnership (NIRDP) is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.

Want to receive our newsletter?

We only send out our newsletter when we have something to share and that’s usually about every couple of months.

subscribe

Your Basket

Want to help us a little?

If you would like to help us to continue to help others, we'd really appreciate a donation.

Events

Due to volunteer availability, most orders will not be shipped until after October 27th.


Warning: Parameter 1 to W3_Plugin_TotalCache::ob_callback() expected to be a reference, value given in /home/pseudomy/public_html/wp-includes/functions.php on line 3721