My initial symptom was a tiny pain (feel like pins & needles) from my lower abdomen, it only last a couple of seconds, it came and went.  I was a healthy, active mum filled with energy and a busy life style.

pseudomyxoma-survivor-miranda

Miranda shares her pseudomyxoma peritonei story

This discomfort did not stopping me from doing anything including my regular active sport – badminton. I ignored this tiny pain didn’t think it was a sign of a disease until one year later, during my long Christmas break, planning to spend some lovely time with my kids, and pampering at the same time. I decided to go to check it out.

The ultrasound picked up some abnormality from my abdomen – it showed cystic masses in both ovaries.  The blood test results showed three out of the four tumour markers were elevated.  The diagnostic was treated as ovarian cancer.  I had debulking surgery where it was found that I had stage 3 pseudomyxoma peritonei (PMP).
I then had further cytoreductive surgery, I was so lucky that the surgery was performed by Prof. David Morris who is one of the world expert in this procedure.  I was given HIPEC¹ during the operation and EPIC² after the operation for one week.  I had post surgery complication by a chyle fistula.  I was treated with octreotide and total parenteral nutrition (TPN) throughout the periods at the hospital, I was at the hospital for 5.5 weeks.  The operation left me with a stoma, I had a reversal after 5 months.

Emotionally, I was affected every time I faced my children, particularly my son who has Autism. He relied on my care.  For support, I turned to my family and colleagues from work, community nurses.  Most importantly, I found Kay and she introduced me to the PMP support group.  This group had given a strong support during my darkest time!

My health is fantastic now, I’ve returned to my normal life and be surrounded by families and friends. I was able to get back to my regular favourite sport – badminton – and I went back to work just four weeks after my stoma reversal operation.

If there are three things that I would share with fellow patients, they are:

  • Be strong and confident, just thinking of your children, that they need your care
  • Talk to the PMP support group, they will spiritually assist you and build up your hope – you are not alone
  • Be happy and stay healthy.

I trust my surgeon, Prof. David Morris, who is based at the St George Hospital, Kogarah, NSW, Australia.  I am so thankful that I was placed under his care, he has saved so many lives!

– Miranda

 

  1. HIPEC, heated intraperitoneal chemotherapy
    Chemotherapy given directly into the abdomen during surgery.  It is usually heated to 40C.
  2. EPIC – early post-operative intraperitoneal chemotherapy
    Chemotherapy given directly into the abdomen after surgery

Miranda

Miranda is a pseudomyxoma survivor from Sydney, Australia

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