Here at Pseudomyxoma Survivor, we are doing as much as we can to support us all in the current climate.
As patients ourselves, we were concerned that treatment and monitoring may be affected as our specialists are supporting COVID-19 patients. We were also concerned to find out that patients are considering crowdfunding to have treatment privately rather than on the NHS. We contacted Mr Cecil of the PMI in Basingstoke and Mr Wilson, of the CPOC at The Christie, to present our concerns to them. We know they must both be exceedingly busy and we’re very grateful that they have issued us with the following statement
“Many thanks for sharing your concerns and it is a very challenging situation. Please rest assured we are contacting patients and continue to provide advice and support for more urgent conditions. You will be aware that the private sector has been taken over by the NHS so funding is not an issue. It is important to remember that for most patients with pseudomyxoma it is slow progressing and changes over months to years rather than days and weeks.”
Further investigation has revealed that there are currently no private options available for peritoneal surgery in the UK and the FCO advises against all but essential travel outside the UK due to the risk of covid-19. PMP is slow-growing for the majority of patients and our advice would be to think of this as an enforced watch, wait and see period.
We’re sure you would join with us in supporting the teams in these strange and difficult times. Leave a message for them below and we’ll be sure to pass it on.
I am one of the lucky ones who had my surgery in Basingstoke on the 3rd of March. Even with everything else that was going on I was treated extremely well, everyone from the departments I visited were professional and polite and did not show signs of the strain they were obviously under. I thank you all. I will as soon as I’m allowed thank you all by letter.