What we do
Support and information • Awareness • Research
Pseudomyxoma Survivor provide support & information for the PMP community
- We offer online support to patients and carers through our online communities
- We have an active Facebook and Twitter pages where we can communicate with each other in a social online environment. We are also on Google+, Tumblr and Pinterest promoting awareness and community
- We develop authoritative information with input from patients, carers and healthcare professionals.
We bring about change to raise awareness of pseudomyxoma peritonei and improve standards of treatment and care
- We bring together people who are affected personally by the disease and who want to help shape and improve sarcoma services and to raise awareness be that locally, nationally or internationally
- We are represented on national, local and European initiatives working to improve standards of treatment and care
- We are active in the areas where we can affect policy representing the experiences of PMP patients and lobbying for more awareness and improved standards of care
Multi-disciplinary Diagnostic Centres
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a one-stop shop and have all of the tests they require to help with a diagnosis.
An evidence-based approach
The BMJ defines evidence-based medicine as:
“the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients”
It’s a constantly evolving definition and at Pseudomyxoma Survivor, we always look for scientific evidence to back up suggested treatment plans for pseudomyxoma peritonei (PMP) and appendix cancer patients.
Gearing up for PSOGI 2018
The PERITONEAL SURFACE ONCOLOGY GROUP INTERNATIONAL conference (PSOGI2018), now in its 11th year, is almost upon us. I can't quite believe it's been two years since we attended the one in Washington DC! PSOGI is a non-profit organisation which aims to...
Update from our Chair
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....