All Countries, Country, Diagnosis, Patient Advocacy
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a...
All Countries, In Remembrance, UK
Liam Clarke is a much-missed member of our PMP family and Kathy continues to support us even as she deals with her own loss. Susan and I had the privilege of meeting them both in Belfast last year and were both impressed then by the courage and grace with which he...
Coping with PMP, Survivor's post, Survivor's Story (UK), UK
My name is Richard White and I am a 38-year-old married teacher. On March 1st 2016, I was admitted to hospital with abdominal pain and operated on the next day. The surgeon found a tumour in my appendix and mucin throughout my abdomen. This story is about what...
All Countries, Raising Awareness
I wanted to help raise awareness for Rare Disease Day this year, February 29th, so I made a video about my experiences with pseudomyxoma peritonei (PMP). This was the hardest thing I ever made, but it was more than worth it. I don’t want other families to have...
All Countries, Fundraising, Raising Awareness, Survivor's Story (UK)
I had cancer. It still doesn’t seem real, yet this wasn’t a bad dream; it was the very cold reality that I faced 18 months ago. My journey of discovery didn’t start in the extreme way that one might expect with such a serious condition, but with a few...
