all countries, specialist
In patients diagnosed with pseudomyxoma peritonei (PMP), extensive surgical removal of all visible disease (‘debulking’) combined with instillation of heated chemotherapy in the peritoneal cavity (HIPEC) offers the best chance of cure. However, in some patients,...
all countries, medical advisor
Continuing our commitment to supporting those affected by pseudomyxoma peritonei, appendix cancer and other rare peritoneal malignancies, clinical psychologist Dr Jason Spendelow has joined our board of medical advisors. Jason has been a member of our community for...
all countries, appendix cancer, carcinoma of the appendix, low grade mucinous appendiceal neoplasm, mucinous appendiceal adenocarcinoma, multicystic peritoneal mesothelioma, pseudomyxoma peritonei
In our workshops with Dr Jason Spendelow, we’ve been looking at how we can deal with the feelings we have after a diagnosis with pseudomyxoma peritonei (PMP) or appendix cancer. One of the techniques Jason introduced us to is expansion. Expansion means opening...
all countries, survivor's post
When someone is battling cancer, they are usually overwhelmed and a thoughtful, useful gift can make a big difference in their daily life or comfort level. I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a...
all countries, coronavirus, COVID-19
Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination. There is no evidence to support that people with rare diseases should avoid...
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