Rare Disease UK

Rare Disease UK is the national campaign for people with rare diseases and all who support them. Rare Disease UK provides a united voice for the rare disease community by capturing the experiences of patients and families....

What’s MOAS?

MOAS is an abbreviation for the term the “Mother of All Surgeries” and refers to CRS and HIPEC.  The phrase was coined by the wife of a patient on her blog about their experiences with pseudomyxoma peritonei. The expression stuck and has become standard language in...

CORD

CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments,...