Coping with your disease

We’re looking at different aspects of our service and where we should focus. As part of that, we are looking at a series of questions and we’d like your help. Our first question for you is Has being a member of our online support group or the PMP...

Rare Disease Day 2020

Rare Disease Day is the official international awareness-raising campaign for rare diseases and takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare...

Mitomycin-C shortage – information for UK patients.

On October 24th 2019, the Medicines and Healthcare products Regulatory Agency (MHRA) distributed a CAS Alert for Mitomycin-C regarding its supply and distribution. CAS is the Central Alerting System which cascades warnings regarding medicines and medical devices...

Announcing our Bereavement Support Group

Here at Pseudomyxoma Survivor, our focus is very much on surviving with pseudomyxoma peritonei (PMP) and appendix cancers. One group of our community who are surviving with PMP and appendix cancer are those that are surviving after the loss of a loved one to the...

Donate tissue sample – US patients

Calling US patients: Do you have an upcoming surgery or an ascites drain scheduled in the United States? If so, please consider donating your excess tissue for an important research project. The ACPMP Research Foundation has partnered with Pattern.org to enable...