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#helpushelpyou

all countries, patient advocacy, Treatment

The current climate has presented us with many issues and one of the greatest concerns is not many of us have visited a hospital for care during the COVID-19 pandemic. Given the significant disruption that COVID-19 caused to cancer diagnosis and treatment, combined...

Biweekly insight on PMP

all countries, coronavirus, COVID-19

Given the difficult situation we find ourselves in, we wanted to ensure that everyone in our community receives the extra support they need from us. That’s why we have decided to launch a new initiative to send you more regular updates on topics which you may find of...

NHS Standard Contract for 2020/21

all countries

As part of our continuing relationship with Cancer52, we have been able to make a submission on the consultation for the NHS Standard Contract towards the Faster Diagnosis Standard. I have submitted the following on behalf of Pseudomyxoma Survivor: Pseudomyxoma...

Fundraising and Donations update

all countries, fundraising, supporting Pseudomyxoma Survivor, UK

Your fundraising and donations have enabled us to donate to both the Peritoneal Tumour Service at The Christie in Manchester and to the Peritoneal Malignancy Institute at the Basingstoke and North Hampshire Hospital for research trials this year. We are very excited...

ERNs: Lend your support to the UK’s continued involvement

all countries, research

The voice of rare disease patients in Europe, EURORDIS, is supporting the Genetic Alliance UK’s #ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. ERNs...

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Categories Select Category book review coping with PMP country    all countries    Australia    Belgium    Brazil    Canada    France    Israel    Switzerland    Turkey    UK    USA       Pittsburg COVID-19    coronavirus cycling for Pseudomyxoma Survivor diagnosis    appendix cancer    carcinoma of the appendix    low grade mucinous appendiceal neoplasm    mucinous appendiceal adenocarcinoma    pseudomyxoma peritonei frequently asked questions fundraising    Kiltwalk    LLHM guestbook in remembrance in the news links media origin patient advocacy pseudomyxoma peritonei research PSOGI raising awareness Rare Disease day research running for Pseudomyxoma Survivor specialist    find a specialist sponsors supporting Pseudomyxoma Survivor survivor’s post survivor’s Story    Survivor’s Story (Australia)    Survivor’s Story (Canada)    Survivor’s Story (India)    Survivor’s Story (Israel)    Survivor’s Story (UK)    Survivor’s Story (USA) Survivor’s Story (Brazil) Treatment Treatment Centres    Peritoneal Malignancy Institute Basingstoke Trustees Uncategorised Volunteering

Recent Comments

• Mark Leslie Sullivan on The disease was actually growing out of my belly button!
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