Audrey Hepburn believed that ‘As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others’ and this is the ethos of Pseudomyxoma Survivor.
Articles by Susan
Susan Oliver was diagnosed with pseudomyxoma peritonei (PMP), and she underwent surgery to remove the disease. Years after her surgery, Susan became an advocate for PMP awareness and the Chair of Pseudomyxoma Survivor. Grateful thanks to Susan for her continued support, her write ups of conferences and meetings and her crafty ideas as well as the support she shows to patients.
It is with a heavy heart that we announce that our friend and colleague, Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years.
We’re looking for trustees!
We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide our important work. Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. Is this you?
Extending our emotional support programme
Announcing our workshops which are intended to be quite practical and interactive, so people will be encouraged to participate and ask questions where they feel comfortable.
The Gifting Season continues
All ready for tomorrow’s trip to the Christie. A little something for each of the staff that help to look after Pseudomyxoma Survivors.
The Gifting Season is Underway…
Our first box of Christmas goodies is going out tomorrow – our way of saying “thank you” to the amazing hospital consultants and staff that have helped look after pseudomyxoma survivors on the wards.
The current climate has presented us with many issues and one of the greatest concerns is not many of us have visited a hospital for care during the COVID-19 pandemic.
Biweekly insight on PMP
Given the difficult situation we find ourselves in, we wanted to ensure that everyone in our community receives the extra support they need from us. That’s why we have decided to launch a new initiative to send you more regular updates on topics which you may find of interest.
NHS Standard Contract for 2020/21
Pseudomyxoma Survivor welcomes the introduction of the Faster Diagnosis Standard which will ensure that all patients who are referred urgently for the investigation of suspected cancer by their GP or a screening programme find out, within 28 days, if they do or do not have a cancer diagnosis. This standard will be introduced in April 2020.
Fundraising and Donations update
Your fundraising and donations have enabled us to donate to both the Peritoneal Tumour Service at The Christie in Manchester and to the Peritoneal Malignancy Institute at the Basingstoke and North Hampshire Hospital for research trials this year. We are very excited that both trials fit with our charity remit – assisting those with pseudomyxoma peritonei (PMP). Thank you.
ERNs: Lend your support to the UK’s continued involvement
The voice of rare disease patients in Europe, EURORDIS, is supporting the Genetic Alliance UK’s #ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. How can you help?
Securing a cancer workforce for the best outcomes
One of the connections we have made this year is with National Voices, the coalition of charities that stands for people being in control of their health and care. National Voice has drawn our attention to a new report published by Cancer Research UK, ‘Securing a cancer workforce for the best outcomes’.