#CopingWithPMP, #Fundraising, all countries, France, survivor's Story, Survivor's Story (UK), Switzerland, UK
I was a healthy 43 years old going about my business when in August 2014 I was rushed to hospital with a burst appendix. I had been suffering from bowel pain on and off for at least 2 years and assumed I had an irritable bowel so it was a relief to finally have my...
#CopingWithPMP, #coronavirus, #COVID-19, all countries
We hope you’ve been keeping well in lockdown. This is a difficult time for everyone, especially for those of us living with or affected by pseudomyxoma peritonei and other cancers of the appendix. Our online community and Buddies system continue to provide forums of...
#CopingWithPMP, #Fundraising, #LLHM, all countries, running for Pseudomyxoma Survivor, Survivor's Story (UK)
Two and a half years ago, neither Annie or Jim had heard of pseudomyxoma peritonei (PMP). In November 2017, Jim was diagnosed with a high-grade appendix tumour that was the first stage of the disease. The following February, Jim underwent cytoreductive surgery at...
#BookReview, #CopingWithPMP, survivor's post, Survivor's Story (UK), UK
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
#CopingWithPMP, all countries, survivor's post, survivor's Story, Survivor's Story (UK), UK
Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles My first scan is in March and I...
#CopingWithPMP, #InTheNews, #media, all countries, Survivor's Story (UK), UK
Following the Loose Women Body Stories campaign, Lisa took part in a photo shoot organised by The Sun newspaper. We caught up with her and talked to her about the shoot. PMPS: Hi Lisa, why did you want to take part in the photo shoot? Lisa: I did it for a couple of...
#CopingWithPMP, #diagnosis, #InTheNews, #RaisingAwareness, all countries, research
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
#CopingWithPMP, #PatientAdvocacy, #RaisingAwareness, all countries, research, supporting Pseudomyxoma Survivor, UK
Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in...
#CopingWithPMP, survivor's post, Survivor's Story (UK), UK
My name is Richard White and I am a 38-year-old married teacher. On March 1st 2016, I was admitted to hospital with abdominal pain and operated on the next day. The surgeon found a tumour in my appendix and mucin throughout my abdomen. This story is about what...
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