Book review, Coping with PMP, Survivor's post, Survivor's Story (UK), UK
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
All Countries, Coping with PMP, Survivor's post, Survivor's Story, Survivor's Story (UK), UK
Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles My first scan is in March and I...
All Countries, Coping with PMP, In the News, Media, Survivor's Story (UK), UK
Following the Loose Women Body Stories campaign, Lisa took part in a photo shoot organised by The Sun newspaper. We caught up with her and talked to her about the shoot. PMPS: Hi Lisa, why did you want to take part in the photo shoot? Lisa: I did it for a couple of...
All Countries, Coping with PMP, Diagnosis, In the News, Raising Awareness, Research
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
All Countries, Coping with PMP, Patient Advocacy, Raising Awareness, Research, Supporting Pseudomyxoma Survivor, UK
Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in...
Coping with PMP, Survivor's post, Survivor's Story (UK), UK
My name is Richard White and I am a 38-year-old married teacher. On March 1st 2016, I was admitted to hospital with abdominal pain and operated on the next day. The surgeon found a tumour in my appendix and mucin throughout my abdomen. This story is about what...
