NHS Standard Contract for 2020/21

As part of our continuing relationship with Cancer52, we have been able to make a submission on the consultation for the NHS Standard Contract towards the Faster Diagnosis Standard. I have submitted the following on behalf of Pseudomyxoma Survivor: Pseudomyxoma...

Share your story and leave us a review!

If you love our work then tell the world! You have an opportunity to help us make even more of a difference in our community. GreatNonprofits —a review site like TripAdvisor— will be honouring highly reviewed nonprofits with their 2020 Top-Rated Awards. Won’t...

Coping with your disease

We’re looking at different aspects of our service and where we should focus. As part of that, we are looking at a series of questions and we’d like your help. Our first question for you is Has being a member of our online support group or the PMP...

Rare Disease Day 2020

Rare Disease Day is the official international awareness-raising campaign for rare diseases and takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare...