All Countries, In the News
Can you help build a better understanding of patient awareness about thrombosis? New patient survey launched across Europe (including the UK). People with cancer have a higher than normal risk of developing a blood clot – a condition known as cancer-associated...
All Countries, pseudomyxoma peritonei, Survivor's Story, Survivor's Story (USA)
I found out about my cancer in a roundabout way, but when I look back there were signs. I do an exercise class and I was having trouble keeping up and my belly was growing with no changes to my diet. In my head, I was thinking that was just signs of perimenopause and...
All Countries, appendix cancer, Survivor's Story (USA), USA
When someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. That was also the case when I found the support group after I was diagnosed in June of last year. I was actually misdiagnosed by my first...
All Countries, Survivor's post, UK
Iain Member of our support group I just have to say, getting home from hospital after surgery is not a competition. If you manage to get there quickly, well done you! However, everyone is different, MOAS (mother of all surgeries)* is a very invasive procedure and...
All Countries, Rare Disease day
Those of us affected by pseudomyxoma peritonei and appendix cancer are amongst the millions of people affected by rare diseases around the world. As a community, we face huge challenges each and every day. Can you imagine going to multiple doctors who cannot diagnose...
Book review, Survivor's post, Survivor's Story (UK), UK
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
