Shortage of Radiologists

As patients, we are all very much aware of the pressure on radiology departments and the ensuing delays.  The Royal College of Radiologists (RCR) has today published the Clinical Radiology UK Workforce Report 2018, which highlights the pressures affecting both...

Easter Shop

Margaret and Marion’s Easter Knits Bunny with button badgeRated 5.00 out of 5 £5.00 Small Bunny with Easter egg £3.00 We were so happy to receive this box of knitted items from Pseudomyxoma Survivor friend, Margaret. Knitted by Margaret and her...

An Open Letter to Government

In January 2018, the Department of Health and Social Care and NHS England published implementation plans for the UK Strategy for Rare Diseases, to work in parallel to ensure all 51 commitments are met. Today the Department of Health and Social Care have published an...

If the mountain seems too big today

A poem was shared in our support group today which reminds us that some days we can’t put a brave face on it and that’s okay.  This beautiful poem by Laura Ding-Edwards is available to buy Rainbow Roots website. £1 from every sale will be donated to MIND,...

How can you help us?

Help! We’ve a number of things that we’d like help with at the moment and we’ll be putting together a fuller description of them all shortly. If you think you can help, please get in touch. The areas we’ve already identified include sending out...