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I’m now on ‘watch and wait’ following a diagnosis of pseudomyxoma peritonei
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’.
Dead Man to Iron Man
As I came to terms with the news, I understood that it would be important for me to get as fit as I could to face such an invasive operation ominously dubbed the “The Mother of all Surgeries” or MOAS.
A Joint message from the PMI and CPOC
Here at Pseudomyxoma Survivor, we are doing as much as we can to support us all in the current climate.
As patients ourselves, we were concerned that treatment and monitoring may be affected as our specialists are supporting COVID-19 patients.
Fundraising and Donations update
Your fundraising and donations have enabled us to donate to both the Peritoneal Tumour Service at The Christie in Manchester and to the Peritoneal Malignancy Institute at the Basingstoke and North Hampshire Hospital for research trials this year. We are very excited that both trials fit with our charity remit – assisting those with pseudomyxoma peritonei (PMP). Thank you.
Shortage of Radiologists
As patients, we are all very much aware of the pressure on radiology departments and the ensuing delays. The Royal College of Radiologists (RCR) has today published the Clinical Radiology UK Workforce Report 2018, which highlights the pressures affecting both diagnostic and interventional radiology across the UK.
Trustees Week, 16th November
As trustees, we’re volunteers who ultimately take on the legal, strategic and oversight responsibility for the work carried out by Pseudomyxoma Survivor. We take the leadership role in the charity, donating our time to ensure the organisation is sustainable, well managed and delivers impact for the beneficiaries and our PMP community.
Securing a cancer workforce for the best outcomes
One of the connections we have made this year is with National Voices, the coalition of charities that stands for people being in control of their health and care. National Voice has drawn our attention to a new report published by Cancer Research UK, ‘Securing a cancer workforce for the best outcomes’.
Sad News
All of us here at Pseudomyxoma Survivor are really saddened by the news that Mr Fulford from the Christie has passed away. On behalf of all of us and our support group members, we pass our condolences to the team on the loss of a man that changed the lives of so many. To quote Mr Aziz, “The world is a poorer place without you, Paul”.
Mr Omer Aziz
Omer Aziz is a UK-based consultant colorectal surgeon at The Christie and a member of the Pseudomyxoma Survivor medical advisory board.
Professor Norman Carr
Norman John Carr was previously Director of Research and Consultant Histopathologist at the Peritoneal Malignancy Institute, Basingstoke
I’ve gone from 0km to 10km in just over 6 months!
In 2015, I had cytoreductive surgery and HIPEC for pseudomxyoma peritonei. To thank Pseudomyxoma Survivor for all the support I was given and all the friends I have made through the charity, I’m doing the Southend 10K to raise funds for the charity. I would have been so alone and desperate without the charity and I cannot thank you enough x