#coronavirus, #COVID-19, all countries
Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination. There is no evidence to support that people with rare diseases should avoid...
#coronavirus, #COVID-19, #PatientAdvocacy, all countries, UK
Pseudomyxoma Survivor is immensely proud to be a member of Cancer52. Cancer52 represents predominantly small patient support group cancer charities such as ourselves and by coming together, we aim to promote improved diagnosis, treatment and support for those affected...
#coronavirus, #COVID-19, all countries
We hope you’ve been keeping well these last couple weeks, and have been keeping safe and well as the coronavirus pandemic wears on. Health workers and political figures alike have been working hard to ensure we get the medical care and support we need, and we hope...
#coronavirus, #COVID-19, all countries, Canada
Lockdown has been a strange time. I am happy we are all together – my husband is able to work from home and our teen is doing his university courses remotely while we hunker down with our cat and dog. The past month or so our focus was on finding ways to better...
#coronavirus, #COVID-19, all countries, UK
When word was spreading that coronavirus may happen and schools might close, I was still very much living in a fog of grief. I lost my husband 12 months ago after caring for him for 10 years. He was 41. I had got used to living day to/by day and by that I mean just...
#coronavirus, #COVID-19, all countries
It’s been a long lockdown and we hope you’ve seen some of the sunshine over the last couple weeks. Lockdowns across the world have been easing and we hope you’ve managed to at least get in the garden if you have one. As garden centres are opening up in the UK and...
#coronavirus, #COVID-19, all countries
We hope you’ve been keeping safe and healthy during lockdown. Lockdown has gone on for weeks but at least the sunshine here has made everything feel better. We’re forecast a cold snap, let’s hope we can get back to sunshine quickly. Those of us undergoing...
#CopingWithPMP, #coronavirus, #COVID-19, all countries
We hope you’ve been keeping well in lockdown. This is a difficult time for everyone, especially for those of us living with or affected by pseudomyxoma peritonei and other cancers of the appendix. Our online community and Buddies system continue to provide forums of...
#coronavirus, #COVID-19, all countries
Yesterday it was announced by NHS England and NHS Digital that Splenectomy patients should be formally included on the Shielded Patient List, as they are considered extremely vulnerable. There have previously been many mixed messages about splenectomy patients. These...
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