all countries, patient advocacy, Treatment
The current climate has presented us with many issues and one of the greatest concerns is not many of us have visited a hospital for care during the COVID-19 pandemic. Given the significant disruption that COVID-19 caused to cancer diagnosis and treatment, combined...
all countries, patient advocacy, research, Volunteering
In December, Susan and Angela have been asked to present at the EuroPMP International Workshop on pseudomyxoma peritonei. It is a privilege to be asked to present to this network of experts from many fields, including surgeons, pathologists, oncologists, radiologists,...
all countries, country, patient advocacy, Treatment, UK
One of the connections we have made this year is with National Voices, the coalition of charities that stands for people being in control of their health and care. National Voice has drawn our attention to a new report published by Cancer Research UK, ‘Securing a...
all countries, patient advocacy, raising awareness, Trustees
One of the recommendations of the Charity Commission, whoregister and regulate charities in England and Wales, is that charities work with other charities. This is extremely important to the trustees of Pseudomyxoma Survivor and key to a lot of the things we do. We...
all countries, patient advocacy
I am finally getting round to informing you all of my recent visit to West Yorkshire & Harrogate Cancer Alliance. We were invited by Cancer 52 and the meeting was a great and informative one, attended by other Cancer 52 charities such as Target Ovarian Cancer,...
all countries, country, diagnosis, patient advocacy
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a...
all countries, patient advocacy, PSOGI, raising awareness
Pseudomyxoma Survivor representatives once again attended the bi-annual Peritoneal Surface Oncology Group International (PSOGI) conference, this time it was in Paris. The PSOGI aims to “improve the treatment and survival of peritoneal cancer patients by educating...
all countries, in the news, patient advocacy, raising awareness, research
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....
all countries, patient advocacy, raising awareness
Huge thanks to everyone who came to speak to us at our table at the Peritoneal Tumour Patient Day at The Christie yesterday. It was lovely to see some old friends and to make lots of new ones. We were overwhelmed by the donations the charity received and so busy that...
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