Cancer52 has launched a survey to understand how the second wave of the coronavirus pandemic is impacting our community.
Second wave survey
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Patient Advocacy articles
The Gifting Season continues
All ready for tomorrow’s trip to the Christie. A little something for each of the staff that help to look after Pseudomyxoma Survivors.
#helpushelpyou
The current climate has presented us with many issues and one of the greatest concerns is not many of us have visited a hospital for care during the COVID-19 pandemic.
EuroPMP International Workshop on pseudomyxoma peritonei
In December, Susan and Angela have been asked to present at the EuroPMP International Workshop on pseudomyxoma peritonei. It is a privilege to be asked to present to this network of experts from many fields, including surgeons, pathologists, oncologists, radiologists, molecular biologists, bioinformaticians and allied health care professionals of which Angela is a participant.
Securing a cancer workforce for the best outcomes
One of the connections we have made this year is with National Voices, the coalition of charities that stands for people being in control of their health and care. National Voice has drawn our attention to a new report published by Cancer Research UK, ‘Securing a cancer workforce for the best outcomes’.
Trustees Week 14th November
One of the recommendations of the Charity Commission, the body that regulates charities in the UK, is that charities work with other charities. This is extremely important to the trustees of Pseudomyxoma Survivor and key to a lot of the things we do.
West Yorkshire & Harrogate Cancer Alliance
I am finally getting round to informing you all of my recent visit to West Yorkshire & Harrogate Cancer Alliance. We were invited by Cancer 52 and the meeting was a great and informative one.
Multi-disciplinary Diagnostic Centres
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a one-stop shop and have all of the tests they require to help with a diagnosis.
PSOGI 2018
Pseudomyxoma Survivor representatives once again attended the bi-annual Peritoneal Surface Oncology Group International (PSOGI) conference, this time it was in Paris. The PSOGI aims to “improve the treatment and survival of peritoneal cancer patients by educating patients, by training physicians, by organizing meetings and by performing basic and clinical scientific research into peritoneal cancer and the different treatment modalities”.
Update from our Chair
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....
Peritoneal Tumour Patient Day at The Christie 2018
Huge thanks to everyone who came to speak to us at our table at the Peritoneal Tumour Patient Day at The Christie yesterday. It was lovely to see some old friends and to make lots of new ones. We were overwhelmed by the donations the charity received and so busy that...
Eurordis General Assembly 2018
Susan's representing Pseudomyxoma Survivor at the EURORDIS - European Rare Diseases Organisation General Assembly this week.