all countries, raising awareness, specialist, Treatment Centres
Our first box of Christmas goodies is going out tomorrow – our way of saying “thank you” to the amazing hospital consultants and staff that have helped look after Pseudomyxoma Survivors on the wards. As always, a huge thanks also to our fundraisers...
all countries, fundraising, raising awareness
Three years ago, our daughter Romy was diagnosed with pseudomyxoma peritonei (PMP) which usually begins as a slow-growing tumour in the appendix after which the cancer gradually spreads across the peritoneal area. She is still in recovery and I’m delighted to say is...
all countries, in the news, raising awareness
We were invited by our patron, Sean Hepburn Ferrer, to the VIP opening reception of the Intimate Audrey exhibition. Intimate Audrey is an exhibition on the life of Audrey Hepburn created by her son, Sean, to celebrate her 90th birthday anniversary in her birth town of...
all countries, patient advocacy, raising awareness, Trustees
One of the recommendations of the Charity Commission, whoregister and regulate charities in England and Wales, is that charities work with other charities. This is extremely important to the trustees of Pseudomyxoma Survivor and key to a lot of the things we do. We...
all countries, fundraising, Nicky, pseudomyxoma peritonei, raising awareness, running for Pseudomyxoma Survivor, Survivor's Story (UK), UK
So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...
all countries, patient advocacy, PSOGI, raising awareness
Pseudomyxoma Survivor representatives once again attended the bi-annual Peritoneal Surface Oncology Group International (PSOGI) conference, this time it was in Paris. The PSOGI aims to “improve the treatment and survival of peritoneal cancer patients by educating...
all countries, in the news, raising awareness, research
The PERITONEAL SURFACE ONCOLOGY GROUP INTERNATIONAL conference (PSOGI2018), now in its 11th year, is almost upon us. I can’t quite believe it’s been two years since we attended the one in Washington DC! PSOGI is a non-profit organisation which aims to...
all countries, in the news, patient advocacy, raising awareness, research
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....
all countries, patient advocacy, raising awareness
Huge thanks to everyone who came to speak to us at our table at the Peritoneal Tumour Patient Day at The Christie yesterday. It was lovely to see some old friends and to make lots of new ones. We were overwhelmed by the donations the charity received and so busy that...
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