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Raising Awareness articles

The Gifting Season is Underway…

Our first box of Christmas goodies is going out tomorrow – our way of saying “thank you” to the amazing hospital consultants and staff that have helped look after pseudomyxoma survivors on the wards.

Trustees Week 14th November

Trustees Week 14th November

One of the recommendations of the Charity Commission, the body that regulates charities in the UK, is that charities work with other charities. This is extremely important to the trustees of Pseudomyxoma Survivor and key to a lot of the things we do.

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I’ve gone from 0km to 10km in just over 6 months!

I’ve gone from 0km to 10km in just over 6 months!

In 2015, I had cytoreductive surgery and HIPEC for pseudomxyoma peritonei. To thank Pseudomyxoma Survivor for all the support I was given and all the friends I have made through the charity, I’m doing the Southend 10K to raise funds for the charity. I would have been so alone and desperate without the charity and I cannot thank you enough x

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PSOGI 2018

PSOGI 2018

Pseudomyxoma Survivor representatives once again attended the bi-annual Peritoneal Surface Oncology Group International (PSOGI) conference, this time it was in Paris. The PSOGI aims to “improve the treatment and survival of peritoneal cancer patients by educating patients, by training physicians, by organizing meetings and by performing basic and clinical scientific research into peritoneal cancer and the different treatment modalities”.

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Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.

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Serendipity…

Serendipity…

Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in Norfolk, has brought our two charities together.

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Susan’s Cancer Voices Book Reviews

Susan’s Cancer Voices Book Reviews

As part of my commitment to raising awareness of PMP, I am also a Macmillan Cancer Voice. Cancer Voices are people from across the UK who share their experiences to help shape cancer services and improve cancer care. I’ve been to a few meetings in the past and more recently I have been reviewing books for them.

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Supporting a friend

Supporting a friend

When Nicki’s friend was diagnosed with pseudomyxoma peritonei (PMP), Nicki decided she would show her support by raising awareness and some funds for the charity at the same time. She came up with a plan that is visible and also supported another charity as well as Pseudomyxoma Survivor.

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My PMP journey and why I’m doing my bit to raise awareness

My PMP journey and why I’m doing my bit to raise awareness

I was diagnosed with PMP aged 32, after many months of stomach pains, bloating, constipation and irregular periods. After numerous trips to my GP, which led to an ultrasound and eventually a CT scan, I was told I had a nine centimetre tumour on my appendix which had burst and leaked cancerous mucin into my abdominal cavity.

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Raising awareness of Pseudomyxoma Peritonei

When my mother was diagnosed cancer, I was very young. I saw my mother as a friend rather than a mother, we did everything together. I would often tell my mother about things with great enthusiasm. When she had to go into hospital and I couldn’t contact her, I started...

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