Eurordis Membership Meeting 2017

Eurordis Membership Meeting 2017

So once more I have been representing Pseudomyxoma Survivor and this time I found myself at the Eurordis Membership Meeting in Budapest. Representing 30 million people affected by rare diseases throughout Europe, Eurordis is a non-governmental patient-driven alliance...
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
Take part in Powdered & Waisted’s Draw

Take part in Powdered & Waisted’s Draw

Debi from “Powdered and Waisted” has made this very special corset for a special reason. She met Pseudomyxoma Survivor’s founder, Dawn Green, through a mutual friend. As was Dawn’s way, they soon were talking and Debi soon knew about the...
Christmas Card Competition 2016 Winners

Christmas Card Competition 2016 Winners

We are delighted to announce the results of our Christmas Card Competition 2016. Thank you for all entries and interest. Our winners are… Renee Bearden Williams in the adult category and Emiliana Lawrence in the junior category. I’m sure you’ll agree...
Serendipity…

Serendipity…

Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way“.  A chance meeting, orchestrated by a very special lady in...

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