Researchers have recently published some new figures on the number of people affected by pseudomyxoma peritonei (PMP) in Europe.

Researchers have recently published some new figures on the number of people affected by pseudomyxoma peritonei (PMP) in Europe.
In December, Susan and Angela have been asked to present at the EuroPMP International Workshop on pseudomyxoma peritonei. It is a privilege to be asked to present to this network of experts from many fields, including surgeons, pathologists, oncologists, radiologists, molecular biologists, bioinformaticians and allied health care professionals of which Angela is a participant.
The voice of rare disease patients in Europe, EURORDIS, is supporting the Genetic Alliance UK’s #ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. How can you help?
To attend a conference, where there were 600+ people who not only are aware of my disease but have dedicated their lives to researching and performing operations, through HIPEC, all to help in advancing the search for a cure, was a great honour.
Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in Norfolk, has brought our two charities together.
We’re pleased to announce ourdonation to support the research into pseudomyxoma peritonei at the Christie Hospital, Manchester.