All Countries, Survivor's post, UK
Iain Member of our support group I just have to say, getting home from hospital after surgery is not a competition. If you manage to get there quickly, well done you! However, everyone is different, MOAS (mother of all surgeries)* is a very invasive procedure and...
Book review, Coping with PMP, Survivor's post, Survivor's Story (UK), UK
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
All Countries, Coping with PMP, Survivor's post, Survivor's Story, Survivor's Story (UK), UK
Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles My first scan is in March and I...
All Countries, Patient Advocacy, Raising Awareness, Survivor's post
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I...
All Countries, Country, Survivor's post, Survivor's Story, Survivor's Story (UK), UK
My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them. He just told me that he wrote about me and how well I dealt with my operation and...
All Countries, Survivor's post
The teenage years are difficult enough without living in the shadow of your beloved mum’s terminal cancer diagnosis. Nothing can prepare you for the loss of your mum. Dawn was someone who everyone thought they knew – cancer ambassador, selfie queen – but to us, the...
