all countries, appendix cancer, diagnosis, pseudomyxoma peritonei, survivor's post
I just re-found this article¹ and while it isn’t specifically about pseudomyxoma peritonei (PMP) or appendix cancer, it is very relevant to everyone diagnosed with any cancer and I remember reading it and that it helped me with where my diagnosis (and two...
all countries, survivor's post, UK
Iain Member of our support group I just have to say, getting home from hospital after surgery is not a competition. If you manage to get there quickly, well done you! However, everyone is different, MOAS (mother of all surgeries)* is a very invasive procedure and...
book review, coping with PMP, survivor's post, Survivor's Story (UK), UK
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
all countries, coping with PMP, survivor's post, survivor's Story, Survivor's Story (UK), UK
Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles My first scan is in March and I...
all countries, patient advocacy, raising awareness, survivor's post
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I...
all countries, country, survivor's post, survivor's Story, Survivor's Story (UK), UK
My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them. He just told me that he wrote about me and how well I dealt with my operation and...
all countries, survivor's post
The teenage years are difficult enough without living in the shadow of your beloved mum’s terminal cancer diagnosis. Nothing can prepare you for the loss of your mum. Dawn was someone who everyone thought they knew – cancer ambassador, selfie queen – but to us, the...
coping with PMP, survivor's post, Survivor's Story (UK), UK
My name is Richard White and I am a 38-year-old married teacher. On March 1st 2016, I was admitted to hospital with abdominal pain and operated on the next day. The surgeon found a tumour in my appendix and mucin throughout my abdomen. This story is about what...
all countries, raising awareness, survivor's post
To accompany the recent music video to raise awareness of PMP (pseudomyxoma peritonei), I created this animation explaining what PMP is, and the surgery involved. The illustrations in the video are overlaid with genuine audio from a diary I recorded when I was...
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