Iain Member of our support group I just have to say, getting home from hospital after surgery is not a competition. If you manage to get there quickly, well done you! However, everyone is different, MOAS (mother of all surgeries)* is a very invasive procedure and...
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles My first scan is in March and I...
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor‘ so I had to keep explaining that I...
My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them. He just told me that he wrote about me and how well I dealt with my operation and...
