Basingstoke, country, Peritoneal Malignancy Institute Basingstoke, pseudomyxoma peritonei, Survivor's Story (UK), UK
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’. I had an ultrasound and a large cyst was found. They could not see where...
all countries, multicystic peritoneal mesothelioma, survivor's Story, Survivor's Story (UK)
Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my...
all countries, coping with PMP, France, fundraising, survivor's Story, Survivor's Story (UK), Switzerland, UK
I was a healthy 43 years old going about my business when in August 2014 I was rushed to hospital with a burst appendix. I had been suffering from bowel pain on and off for at least 2 years and assumed I had an irritable bowel so it was a relief to finally have my...
all countries, LLHM, running for Pseudomyxoma Survivor, survivor's Story, Survivor's Story (UK), UK
I am a Pseudomyxoma Survivor! I was diagnosed in May 2018 and underwent life changing surgery and chemotherapy. From that moment I knew my life would be different and I wanted to make the best of every moment I have. So…. I set myself some goals and...
all countries, coping with PMP, fundraising, LLHM, running for Pseudomyxoma Survivor, Survivor's Story (UK)
Two and a half years ago, neither Annie or Jim had heard of pseudomyxoma peritonei (PMP). In November 2017, Jim was diagnosed with a high-grade appendix tumour that was the first stage of the disease. The following February, Jim underwent cytoreductive surgery at...
all countries, fundraising, Nicky, pseudomyxoma peritonei, raising awareness, running for Pseudomyxoma Survivor, Survivor's Story (UK), UK
So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...
book review, coping with PMP, survivor's post, Survivor's Story (UK), UK
I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
all countries, coping with PMP, survivor's post, survivor's Story, Survivor's Story (UK), UK
Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles My first scan is in March and I...
all countries, survivor's Story, Survivor's Story (UK), UK
I had noticed that my stomach had become a bit bigger but I just thought that I had put on a bit of weight (although I was still very slim everywhere else). I got occasional sharp pains in my lower right abdomen but I was undergoing investigations for infertility at...
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