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I’m now on ‘watch and wait’ following a diagnosis of pseudomyxoma peritonei

Basingstoke, country, Peritoneal Malignancy Institute Basingstoke, pseudomyxoma peritonei, Survivor's Story (UK), UK

For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’. I had an ultrasound and a large cyst was found. They could not see where...

I was diagnosed with pseudomyxoma peritonei, but it wasn’t

all countries, multicystic peritoneal mesothelioma, survivor's Story, Survivor's Story (UK)

Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my...

Dead Man to Iron Man

all countries, coping with PMP, France, fundraising, survivor's Story, Survivor's Story (UK), Switzerland, UK

I was a healthy 43 years old going about my business when in August 2014 I was rushed to hospital with a burst appendix. I had been suffering from bowel pain on and off for at least 2 years and assumed I had an irritable bowel so it was a relief to finally have my...

Stacey’s Local Landmarks Challenge

all countries, LLHM, running for Pseudomyxoma Survivor, survivor's Story, Survivor's Story (UK), UK

I am a Pseudomyxoma Survivor! I was diagnosed in May 2018 and underwent life changing surgery and chemotherapy. From that moment I knew my life would be different and I wanted to make the best of every moment I have. So…. I set myself some goals and...

Annie and Jim’s Local Landmarks Half Marathon

all countries, coping with PMP, fundraising, LLHM, running for Pseudomyxoma Survivor, Survivor's Story (UK)

Two and a half years ago, neither Annie or Jim had heard of pseudomyxoma peritonei (PMP). In November 2017, Jim was diagnosed with a high-grade appendix tumour that was the first stage of the disease. The following February, Jim underwent cytoreductive surgery at...

I’ve gone from 0km to 10km in just over 6 months!

all countries, fundraising, Nicky, pseudomyxoma peritonei, raising awareness, running for Pseudomyxoma Survivor, Survivor's Story (UK), UK

So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...

Jill’s Book Review

book review, coping with PMP, survivor's post, Survivor's Story (UK), UK

I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...

This Illness Sucks but I’m Embracing the Moment

all countries, coping with PMP, survivor's post, survivor's Story, Survivor's Story (UK), UK

Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles  My first scan is in March and I...

Even if your case is rare, do not give up…

all countries, survivor's Story, Survivor's Story (UK), UK

I had noticed that my stomach had become a bit bigger but I just thought that I had put on a bit of weight (although I was still very slim everywhere else). I got occasional sharp pains in my lower right abdomen but I was undergoing investigations for infertility at...
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Pseudomyxoma Survivor logoPseudomyxoma Survivor is dedicated to supporting those affected by pseudomyxoma peritonei (PMP),
appendix cancer and other peritoneal surface malignancies through practical and emotional support. We also raise awareness and support research.

As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

Our patron is Sean Hepburn Ferrer, the son of Audrey Hepburn who passed away from appendix cancer.

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Pseudomyxoma Survivor is a registered charity in England and Wales, number 1143642.

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