Join the Pseudomyxoma Survivor Facebook Group

This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.

You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.

Our group is free to join and you need to provide your own tea and biscuits ?We do, of course, welcome donations to the charity but it isn’t a condition of membership.

So if you’re a PMP patient or caregiver and would like some mutual support, please complete this application. The administrators should contact you within 48 hours. Please be patient, we are all volunteers, cancer patients ourselves, so at times it may take us a little longer to respond.

If you have concerns that your application has been missed, please check your spam folder first. If you still don’t have the message, you can email us or message us via our Facebook page.

Are you a patient or a supporter of a patient (partner, relative, friend)?*
patientcaregiverother (relative or friend)

As our Facebook Group is a 'secret' group, you will be invited to join. Shall we send you an invitation?
YesNo


We provide support through a number of services, such as sending a card or a small gift to your home or to the hospital when we think that you'd need them. Would you like to take part? *
YesNo

Contact me by post at home *
YesNo

Contact me by post in hospital *
YesNo

Contact me by text *
YesNo

Contact me by phone (call me)*
YesNo

I have read and agree to the privacy policy*
YesNo

I have read and agree to the group policy*
YesNo

We'll use your details to meet your request and to help deliver and improve our services for those affected by pseudomyxoma peritonei (PMP), appendix cancer and other peritoneal surface diseases. You'll receive an email from us confirming the details you've sent and a series of follow up email which will help you get the best from the group.




Please make sure that you add [email protected] to your address book. If you need some help with that, you will find some instructions on how to whitelist our email address here.

If you have concerns that your application has been missed, please check your spam folder first. If you still don’t have the message, you can email us or message us via our Facebook page.

An evidence-based approach

An evidence-based approach

The BMJ defines evidence-based medicine as: "the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients" It's a constantly evolving definition and at Pseudomyxoma Survivor, we always look for scientific evidence to back up suggested treatment plans for pseudomyxoma peritonei (PMP) and appendix cancer patients. 
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We thought it was nothing more than an ovarian cyst

We thought it was nothing more than an ovarian cyst

My journey started in October 2013 (I was 53 years old), when I had an ultrasound to determine if I had gallstones or an issue with my gallbladder. The results showed a small cyst and mild fluid in my lower right abdomen area. It was decided that we would monitor the cyst and fluid and have an MRI in one year. We thought it was nothing more than an ovarian cyst. I never thought it would lead to a diagnosis of Mucinous Appendiceal Adenocarcinoma.
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The disease was actually growing out of my belly button!

The disease was actually growing out of my belly button!

I do an exercise class and I was having trouble keeping up and my belly was growing with no changes to my diet. In my head, I was thinking that was just signs of perimenopause and that was my new figure. Some women just have a muffin top at 44, right? I was also going to the restroom for frequent urination. I was under the care of a urologist for that at the time of my diagnosis with pseudomyxoma peritonei or PMP.
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