Join the Pseudomyxoma Survivor Facebook Group

This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.

You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.

Our group is free to join and you need to provide your own tea and biscuits ?We do, of course, welcome donations to the charity but it isn’t a condition of membership.

So if you’re a PMP patient or caregiver and would like some mutual support, please complete this application. The administrators should contact you within 48 hours. Please be patient, we are all volunteers, cancer patients ourselves, so at times it may take us a little longer to respond.

If you have concerns that your application has been missed, please check your spam folder first. If you still don’t have the message, you can email us or message us via our Facebook page.

Are you a patient or a supporter of a patient (partner, relative, friend)?*
patientcaregiverother (relative or friend)

As our Facebook Group is a 'secret' group, you will be invited to join. Shall we send you an invitation?
YesNo

We provide support through a number of services, such as sending a card or a small gift to your home or to the hospital when we think that you'd need them. Would you like to take part? *
YesNo

Contact me by post at home *
YesNo

Contact me by post in hospital *
YesNo

Contact me by text *
YesNo

Contact me by phone (call me)*
YesNo

I have read and agree to the privacy policy*
YesNo

I have read and agree to the group policy*
YesNo

We'll use your details to meet your request and to help deliver and improve our services for those affected by pseudomyxoma peritonei (PMP), appendix cancer and other peritoneal surface diseases. You'll receive an email from us confirming the details you've sent and a series of follow up email which will help you get the best from the group.

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Please make sure that you add [email protected] to your address book. If you need some help with that, you will find some instructions on how to whitelist our email address here.

If you have concerns that your application has been missed, please check your spam folder first. If you still don’t have the message, you can email us or message us via our Facebook page.

I was misdiagnosed by my first surgical oncologist

I was misdiagnosed by my first surgical oncologist

When someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. That was also the case when I found the support group after I was diagnosed in June of last year. I was actually misdiagnosed by my first surgical oncologist who thought it was ovarian cancer and told me that it was well behaved and that they would remove it and I would be fine…

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MOAS – It’s not a race

MOAS – It’s not a race

Take your time, there’s no rush, go at your own pace and don’t feel pressured to be at a certain stage, just because someone else is. You’ll get there, in your own time, be happy still to be breathing and above ground……..

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Jill’s Book Review

Jill’s Book Review

I was really positive about my recovery after the major operation for pseudomyxoma peritonei (PMP). I took things really slowly and took good care of myself.

read more