Join the Pseudomyxoma Survivor Facebook Group
This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.
Our group is free to join and you need to provide your own tea and biscuits We do, of course, welcome donations to the charity but it isn’t a condition of membership.
So if you’re a PMP patient or caregiver and would like some mutual support, please complete this application. The administrators should contact you within 48 hours. Please be patient, we are all volunteers, cancer patients ourselves, so at times it may take us a little longer to respond.
My journey started in October 2013 (I was 53 years old), when I had an ultrasound to determine if I had gallstones or an issue with my gallbladder. The results showed a small cyst and mild fluid in my lower right abdomen area. It was decided that we would monitor the cyst and fluid and have an MRI in one year. We thought it was nothing more than an ovarian cyst. I never thought it would lead to a diagnosis of Mucinous Appendiceal Adenocarcinoma.
I do an exercise class and I was having trouble keeping up and my belly was growing with no changes to my diet. In my head, I was thinking that was just signs of perimenopause and that was my new figure. Some women just have a muffin top at 44, right? I was also going to the restroom for frequent urination. I was under the care of a urologist for that at the time of my diagnosis with pseudomyxoma peritonei or PMP.
When someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. That was also the case when I found the support group after I was diagnosed in June of last year. I was actually misdiagnosed by my first surgical oncologist who thought it was ovarian cancer and told me that it was well behaved and that they would remove it and I would be fine…