We’re looking at different aspects of our service and where we should focus. As part of that, we are looking at a series of questions and we’d like your help. Our first question for you is
Has being a member of our online support group or the PMP RareConnect group helped you cope with your diagnosis and disease?
When I was diagnosed I felt so alone, no one to help me understand! Then I found Pseudomyxoma Survivor and Angela Brook… I was a wreck curled up in my 9 year old daughter’s bed freaking out and not wanting to go out! Having a breakdown! The support I found made me get up and fight! The family I found and friends I made are my warriors and I’ve joined the warrior gang! Thank you all xxxx