My first scan is in March and I have no idea what the future holds, this illness sucks but I’m embracing the moment……
MOAS
MOAS – ‘Mother of all Surgeries’ – patients’ name for cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC)
In case you missed it...
MOAS – It’s not a race
Take your time, there’s no rush, go at your own pace and don’t feel pressured to be at a certain stage, just because someone else is. You’ll get there, in your own time, be happy still to be breathing and above ground……..
Remembering Mum
Dawn was someone who everyone thought they knew – cancer ambassador, selfie queen – but to us, the two people who really knew her, she was simply Mum.
Findacure Rare Disease Showcase, Cambridge
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I actually represented an organisation and wasn’t there as a lone survivor of a rare disease!