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Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles 

My first scan is in March and I have no idea what the future holds, this illness sucks but I’m embracing the moment……

Sarah

#MOAS
MOAS

MOAS – ‘Mother of all Surgeries’ – patients’ name for cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC)

In case you missed it...

MOAS – It’s not a race

MOAS – It’s not a race

Take your time, there’s no rush, go at your own pace and don’t feel pressured to be at a certain stage, just because someone else is. You’ll get there, in your own time, be happy still to be breathing and above ground……..

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Remembering Mum

Remembering Mum

Dawn was someone who everyone thought they knew – cancer ambassador, selfie queen – but to us, the two people who really knew her, she was simply Mum.

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Findacure Rare Disease Showcase, Cambridge

Findacure Rare Disease Showcase, Cambridge

The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor.  My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I actually represented an organisation and wasn’t there as a lone survivor of a rare disease!

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This illness sucks but I’m embracing the moment