Eurordis General Assembly 2018 by Pseudomyxoma Survivor | May 9, 2018 | All Countries, Patient Advocacy, Raising Awareness | 0 comments Susan’s representing Pseudomyxoma Survivor at the EURORDIS – European Rare Diseases Organisation General Assembly this week. Related Posts PMP Patients Meeting Basingstoke 10th May 2013 The Waiting is Almost Over! It's just two days until my operation but how did I get to this point? The call came out of the blue. When my gynae consultant's secretary called, ... Why I made an animation about pseudomyxoma periton... So much of what you read online about the disease focuses only on the severity of the illness, and this can be terrifying for patients. I think it’s r... Even if your case is rare, do not give up… Fertility treatment, ovarian cysts, miracles, hernias and crossed fingers. Submit a Comment Cancel reply Your email address will not be published. Required fields are marked *Comment Name * Email * Website Sign me up for the newsletter! Notify me of follow-up comments by email. Notify me of new posts by email. This site uses Akismet to reduce spam. Learn how your comment data is processed.