Sorry I haven’t posted for a while but I have some very exciting news to share. The charity is all but registered with the Charity Commission for England and Wales – I’ve just sent off the last bits of paperwork and I’m awaiting a reply.

The next lot of amazing news is that I have been invited to be a guest speaker at a conference in Toronto, Canada next month. Aimed at exploring rare disorders and new medical treatments for rare cancers, I am so excited about this and cannot thank both the Canadian Organisation for Rare Disorders and also Cancer 52 for giving me such a fantastic opportunity.