My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them. He just told me that he wrote about me and how well I dealt with my operation and chemotherapy afterwards.
He doesn’t talk much about what we went through but when he does he surprises me how much it really affected him. He was only eight. Be brave, everyone, no matter what stage you are at with this dreadful disease.
In case you missed it...
I feel so lucky for family love and care
In 2021, in the midst of the Covid-19 pandemic, I had cytoreductive surgery and HIPEC at the Basingstoke and North Hampshire hospital.
Being sick
The last year and a half has been a profound and unmooring experience, and one I turn over in my mind with gratitude, disbelief, and amazement.
My baby and obstetrician saved my life!
I had a caesarean section on July 12th. This took 35 min and I was delivered of a beautiful, healthy, big baby boy, weighing in at 3820 grams/8.6 pounds. During my normal c-section, I had a further operation, an ’emergency appendectomy’. I had two masses removed and further testing showed they were both cancerous tumours and I was diagnosed with pseudomyxoma peritonei (PMP). I was told I would have to have further treatment in the future. The tumours showed two different types of cancer, carcinoid & appendiceal mucinous tumours.
My wife Susmita Roy also diagnosed pseudomyxoma peritonei low grade. Earlier doctor told benign after surgery and removal of reproductive organs. Wait and watch, doing ct & marker tests on recurring go for cytoreductive surgery with HIPEC. She undergone this on 16 March 2018, now after ICU going to Room for next few days before discharge, looking for post-surgery treatment, care to get over recovery and complete cure. Jayant Roy Mumbai India, advice awaited.
We have no idea about how extensive the impact felt by families (& friends) is, especially for the young, when a close member has endured this MOAS operation. It must be so traumatic for them too. Being brave ..and resilient is hard. Your son is justifiably proud of you & how wonderful that he does open up to you – this is an important message to all who are going through this terrible experience.