There has recently been some discussion about where all this fundraising goes. What actually happens to the money?
So we thought this would be an ideal time to give you the chance to ask questions which we will answer to give you a chance to understand a little more before donating.
As we are sure you appreciate, Pseudomyxoma Survivor is a very small charity run, in the main, by two volunteers and fit in around our own health issues and busy family lives.
We have no office overheads and run the charity on bare minimum funds from our own homes. No salaries are claimed but that is not to say that there aren’t fundamental costs involved with running an organisation such as Pseudomyxoma Survivor.
We always look for the best value taking up the goodwill of some of our amazing suppliers when we can. We have been extremely lucky to have found a number of good people who is such austere and difficult times for many organisations have found it in their hearts (and profit margins) to provide us with essential items at a very low or zero cost to the charity. However, some things just have to be paid for.
So where does your money go?
A £5 donation would pay for the printing and postage of 2 posters.
A £10 donation would pay for a runner’s tabard.
A £100 donation would pay for a leaflet run.
A £1000 donation would pay for one of our small research grants.
With a raft of other things in between.
Donations to date have also funded vital medical equipment for clinical areas at both Basingstoke and the Christie hospitals, the two centres of excellence for PMP in UK as well as helped many patients on a personal level to fund travel and expenses incurred from hospital visits and so on. The establishment of the charity and of the support group together have created an invaluable support advocacy and advice network both online, over the phone and in person as well as raised crucial awareness into this extremely rare disease.
We hope that this has given you a small insight into our world and we would gladly answer any further questions you may have. Just leave us a comment below.
Dawn and Angela