Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my husband took me to hospital. I was admitted and after a scan, they said it was pseudomyxoma peritonei or PMP.
But it wasn’t.
I was referred to The Christie Hospital in Manchester where after cytoreductive surgery and HIPEC, the histology report revealed I have benign multicystic peritoneal mesothelioma. I went home two weeks after surgery and didn’t have any further chemotherapy. Although I’ve recovered from the operation, I suffer a great deal with pain from scar tissue pain, and rib and back pain too. Looking at my scarred body was, for me, the greatest adjustment after surgery.
So little is known about this cancer and I’m sharing my story in the hope that I can find someone else with the same diagnosis.
Other survivors stories you might like to read
I don’t like running. I never have! I find it quite dull, BUT, give me some motivation and a challenge and I’ll do it!
Two and a half years ago, neither Annie or Jim had heard of pseudomyxoma peritonei (PMP). In November 2017, Jim was diagnosed with a high-grade appendix tumour that was the first stage of the disease.
John went into hospital for a hernia operation. Afterwards, he was told that it wasn’t a hernia but a ‘small, bloody mass’. The pathology came back as pseudomyxoma peritonei (PMP).