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Implementation Plan for Rare Diseases in Scotland

Figures from Rare Disease estimates up to 300,000 people in Scotland’s population may be affected by a rare disease over their lifetime. It is also suggested that many people with a rare disease in Scotland have experienced delays in gaining a diagnosis, with several getting a number of diagnoses on the way.

To address this, the Scottish Government have developed an Implementation Plan for Rare Diseases in Scotland as part of the UK Strategy for Rare Diseases, with the aim of improving services for people living with a rare disease and their family members.