My pseudomyxoma peritonei (PMP) was discovered during a proctocolectomy¹ for what was thought to be an uncontrollable flare-up of Ulcerative Colitis. This turned into surgery to remove everything the mucin had touched in May 2001. I received heated chemotherapy during surgery ten days later. My surgeries were at Ashford Hospital, Adelaide and my surgeon was Professor Peter Hewett. My pathology was appendiceal mucosa cystadenoma presenting as pseudomyxoma peritonei.
– Kay
Proctocolectomy
A proctocolectomy is an operation where the rectum and all or part of the colon is removed.
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I will support Pseudomyxoma Survivor in any way I can
“Because of my uncertain prognosis, I am keen to make lots of memories with my children, but now have limited income due to my inability to work as many hours as I used to.”
I thought I had a kidney infection
I feel great. I was worried about catching colds and things without my spleen but I’m as healthy as I was before. My son and husband have caught colds but I have not which is normal for us. I have caught a sickness bug from my son since surgery but I recovered quickly with no problems and again compared to what I’ve been through, it felt like nothing.
Putting on your happy face every day to those you love, trying not to worry them, has been exhausting
It is not in my nature to reveal all of the everyday trials and tribulations to every person I meet. I do believe that this has been the hardest thing I have ever done in my life, and to try and remain calm, cool and collected in the face of such an obstacle, has been exhausting, to say the least.