Links
other resources you may find usefulFundraising Regulator
The independent regulator of charitable fundraising in England, Wales and Northern Ireland.
Rare Disease UK
Rare Disease UK is the national campaign for people with rare diseases and all who support them.
CORD
CORD is Canada’s national network for organizations representing all those with rare disorders. Pseudomyxoma Survivor is a member.
RareConnect
Pseudomyxoma Survivor is the founding organisation of RareConnect’s PMP community.
Eurordis
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
My Pseudomyxoma Peritonei (PMP) Experience
Louise’s story of living with a rare cancer called Pseudomyxoma Peritonei (PMP).
Cancer 52
Cancer52 represents 80 predominantly small cancer charities united by their vision of seeing a better future for everyone affected by the rare and less common cancers, which account for more than half of all cancer deaths in the UK.
http://www.cancer52.org.uk/
Cancer Research UK
Information on Pseudomyxoma Peritonei from Cancer Research UK, a UK charity primarily concerned with raising money to fund research. http://www.cancerresearchuk.org/about-cancer/pseudomyxoma-peritonei
Macmillan Cancer Support
Macmillan Cancer Support is one of the largest British charities and provides specialist health care, information and financial support to people affected by cancer....
The aim of the Northern Ireland Rare Disease Partnership (NIRDP) is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.