Linksother resources you may find useful
ACPMP a nonprofit dedicated to funding research to find a cure for Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM), and to funding educational programs to educate physicians and patients about these diseases....
Cancer52 represents 80 predominantly small cancer charities united by their vision of seeing a better future for everyone affected by the rare and less common cancers, which account for more than half of all cancer deaths in the UK.
Supporting cancer patients, their carers, families and anyone who is affected by cancer. http://www.communitycancercentre.org.uk/
Information on Pseudomyxoma Peritonei from Cancer Research UK, a UK charity primarily concerned with raising money to fund research. http://www.cancerresearchuk.org/about-cancer/pseudomyxoma-peritonei
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe. http://www.eurordis.org/
A charity which aims to improve the lives of those with life limiting conditions and to raise awareness of Pseudomyxoma Peritonei. In memory of Karen Jenkins who lost her battle with PMP. http://karensbigsmiles.org/
Macmillan Cancer Support is one of the largest British charities and provides specialist health care, information and financial support to people affected by cancer. http://www.macmillan.org.uk/Cancerinformation/Cancertypes/Pseudomyxomaperitonei/PMP.aspx
The NET Patient Foundation was established to provide support, education and information to anyone affected by neuroendocrine cancers, advocate for neuroendocrine cancer patients so they may achieve the best possible outcomes, to encourage standardised care for all...
The aim of the Northern Ireland Rare Disease Partnership (NIRDP) is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.
Sara’s blog – her mother has PMP and receives treatment at The Christie Hospital in Manchester, UK. http://pmp-oneinamillion.blogspot.com/