I had just celebrated my 60th birthday, one of our sons and his wife were due a new baby and we already have two granddaughters. In June 2007, I was diagnosed with ovarian cancer. I was fortunate enough to be treated by a wonderful surgeon, Mr. Roger Slade. He just said that he would remove this “mass” and take it from there.
A few days after the surgery he came to tell me that in his opinion it was not ovarian cancer but which he had seen before. I recovered quickly and was then passed over to The Christie Hospital in Manchester for treatment in their clinic.
In March the following year, I had further surgery to remove the spleen, gall bladder and naval, plus “chemo wash“. I had been thrown a lifeline. Far better to have pseudomyxoma peritonei (PMP) than ovarian cancer.
When I was in the hospital there was a man in his late 70s and a 17-year-old. This can hit anyone!
I go to The Christie every six months for a scan because there are still a few bits of the disease left but as yet there has not been any growth. I keep my fingers crossed; I feel fine, have gained weight and the new baby I thought I would not see is four and she has a sister now! We have now been retired for eight years and we had a great trip to New York last year as you can see from the photo.
I survived the shock of it all and the surgery. I also found out once again what a wonderful husband I have. His support was and still is unfailing. We travel a lot and enjoy our grandchildren, what more could I need?
– Ruth
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I will support Pseudomyxoma Survivor in any way I can
“Because of my uncertain prognosis, I am keen to make lots of memories with my children, but now have limited income due to my inability to work as many hours as I used to.”
You have to do research to find the right medical team that is experienced in treating PMP
I didn’t have any related symptoms before my diagnosis. I went to the urologist for some UTI treatment. The doctor (my hero) ordered a CT scan. That was the beginning of my journey. PMP is so rare and the right treatment is so important. You have to do research just to find the right medical team that is experienced in treating PMP. My wife and family, of course, were there for me.
My stomach looked really distended
When we got home from a family holiday and I looked at the photos, my stomach looked really distended. After noticing this, it just seemed to get worse and felt quite hard. I went to see the Doctor and he said I probably had wind or had just put on weight.
My mum has just had a hysterectomy (2 weeks ago) and the Dr discovered that she has PMP. Mum is 87! She is a wonderful person and has recovered so well from this operation and is in great form. A extremely fit and well woman for her years. She has never displayed any symptons etc. Unfortunately as we live in NI the type of operation cannot be done here, therefore Mum would need to travel accross the water.
Is there anyone out there of similar age who has had this type of cancer?
Thanks xx
Hi, not quite your mum’s age,but by mum was diagnosed in December 2009 aged 72. She had her MAOS in March 2010 at Basingstoke x
Good to hear you’re doing so well and have been able to get to the USA – I have just been diagnosed and was worried I would not be able to get travel insurance – in fact we have a trip to Florida booked in April that I’m waiting to hear if we’re going to have to cancel x