The decision to undergo cytoreductive surgery with HIPEC for pseudomyxoma peritonei (PMP) is a personal one and should be made in consultation with your medical team.
Should I have CRS/HIPEC?
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My overnight hospital stay eventually turned out to be 17 nights!
I was informed that I had pseudomyxoma perintonei (the nurse had to write it down for me) and they were referring me to The Christie specialist cancer hospital in Manchester.
What surgery is called the mother of all surgeries?
Treating pseudomyxoma peritonei and appendix cancers can be challenging.
War against cancer
Interview with Dr Sugarbaker, the renowned surgical oncologist on what the future holds for treating the disease.
CRS and HIPEC sounds complicated, what is it?
Cytoreductive surgery (CRS) for pseudomyxoma peritonei (PMP) is a complex operation with the aim of removing all visible tumours, affected tissue and entire organs. The NICE guidelines recommends the Sugarbaker technique and defines the operation as radical.
I thought I had a hernia
John went into hospital for a hernia operation. Afterwards, he was told that it wasn’t a hernia but a ‘small, bloody mass’. The pathology came back as pseudomyxoma peritonei (PMP).
I’ve gone from 0km to 10km in just over 6 months!
In 2015, I had cytoreductive surgery and HIPEC for pseudomxyoma peritonei. To thank Pseudomyxoma Survivor for all the support I was given and all the friends I have made through the charity, I’m doing the Southend 10K to raise funds for the charity. I would have been so alone and desperate without the charity and I cannot thank you enough x
You have to do research to find the right medical team that is experienced in treating PMP
I didn’t have any related symptoms before my diagnosis. I went to the urologist for some UTI treatment. The doctor (my hero) ordered a CT scan. That was the beginning of my journey. PMP is so rare and the right treatment is so important. You have to do research just to find the right medical team that is experienced in treating PMP. My wife and family, of course, were there for me.
I was diagnosed with an inflamed appendix
Before I was diagnosed, I experienced increased abdominal size and piercing pain which was diagnosed initially with an inflamed appendix. It took about four months and another doctor for me to get the correct diagnosis at the end of January 2014.
I had cytoreduction and HIPEC and now I’ve climbed Mount Kilimanjaro!
My local hospital happens to be the centre in Israel for treating this disease and two of the surgeons working there have extensive experience in performing cytoreductive surgery and HIPEC. To those of you have undergone this procedure, I don’t need to say more. If you are still recovering or about to undergo it, I wish you excellent care, strength, patience, and a complete recovery.
I had shortness of breath and my sides ached
I had an ultrasound which showed a large tumour which was confirmed by MRI. I had surgery at my local hospital to remove a tumour the size of a football and my diagnosis of pseudomyxoma peritonei (PMP) was confirmed.
My Olympic Victory
Four years ago, I had to give up my ticket to watch the London Olympics to go to a hospital appointment and be told I had PMP and had only ‘a few months’ if Basingstoke could not offer me CRS and HIPEC. Now I’m in Rio!