If you have been diagnosed with appendix cancer, it is vital to seek a second opinion from an experienced physician who has seen and treated numerous cases of the disease.
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The question we’d all like answered!
Cytoreductive surgery (CRS) for pseudomyxoma peritonei (PMP) is a complex operation with the aim of removing all visible tumours, affected tissue and entire organs. The NICE guidelines recommends the Sugarbaker technique and defines the operation as radical.
The recommendations from the people in the support group are because they care. The decisions we make are literally life and death.
I can’t say it enough… are you dealing with a PMP specialist? If not, I would say you must.
They are the ones that have seen this stuff and the weird things it does. They can give better ideas as to what to do.
In my case, waiting seemed the best option at the time but with the specialist’s input, I chose to go ahead and now, even with the debt, the new body norms and everything, I am sooooo glad I followed his advice! He would have told me to watch and wait if in his experience there was a low risk. And I would have done it.
I didn’t have any related symptoms before my diagnosis. I went to the urologist for some UTI treatment. The doctor (my hero) ordered a CT scan. That was the beginning of my journey. PMP is so rare and the right treatment is so important. You have to do research just to find the right medical team that is experienced in treating PMP. My wife and family, of course, were there for me.