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tagged with #RareCancer

Is pseudomyxoma peritonei a cancer?

Yes, pseudomyxoma peritonei (PMP) is a rare cancer that usually starts in the appendix and can spread to the peritoneum, which is the lining of the abdominal cavity.

Announcing our Bereavement Support Group

Announcing our Bereavement Support Group

Here at Pseudomyxoma Survivor, our focus is very much on surviving with pseudomyxoma peritonei (PMP) and appendix cancers. One group of our community who are surviving with PMP and appendix cancer are those that are surviving after the loss of a loved one to the...

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MP backs group work on cancer

MP backs group work on cancer

Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52. Based on current data, 46 percent of cancers diagnosed are rare and less common, yet they account for 54 percent of cancer deaths.

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Where did we come from?

Where did we come from?

Launched by Dawn Green in 2011, Pseudomyxoma Survivor works to improve the lives of the living with PMP, as a patient or as a caregiver. Struggling to find support herself, Dawn was keenly aware that there was a lack of emotional support for anyone with the disease. She dedicated the website to the memory of a fellow PMP patient, Julie Stanton.

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My stomach looked really distended

My stomach looked really distended

When we got home from a family holiday and I looked at the photos, my stomach looked really distended. After noticing this, it just seemed to get worse and felt quite hard. I went to see the Doctor and he said I probably had wind or had just put on weight.

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