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Terms and Conditions

Charity Information

Pseudomyxoma Survivor is a Registered Charity in England and Wales number 1143642.

Our registered address is:
9 Ilmington Close
Hatton Park
CV35 7TL

The website is owned by Pseudomyxoma Survivor and the data controller is Angela Brook. We are registered with the Information Commissioners Office and our registration number is ZA308120.

Contract execution

Your personal data will be used to provide the information, goods and services offered through our website to you, for billing and order fulfillment.

Email newsletter

  • If you sign up to our newsletter we may use your email address to send you information about products or services.
  • You can opt out of these at any point and you can ask for personal data to stop being recorded at any time.

Dispatch Policy

While every effort will be made to ensure that all items shown are in stock we offer no guarantee of availability and this electronic publication does not constitute an offer for sale. Goods are normally dispatched within 7 days. Please remember that we are all volunteers and patients ourselves so this may cause delays from time to time. We will do our best to keep you notified of progress.


The price shown for the goods excludes postage and packing. The charges for postage and packing are shown at the checkout once you have entered the country for delivery and before you are asked to confirm the order.

Prices for items from our Zazle store are an indication only – Zazzle control their own pricing.


The colour of goods may vary slightly from that shown on the website due to limitations of browser software and monitors.

Order cancellation & refund policy

You have the right to cancel the purchase of a good without having to give a reason at any time within the “cooling off period” of seven working days, beginning on the day after you receive the goods.

If you are in possession of the goods you are under the duty to retain them and take reasonable care of them. You must send the goods back to us to our contact address at your own cost (unless we delivered the item to you in error or the item is damaged or defective) as soon as possible once you have cancelled the contract.

We reserve the right to make a charge not exceeding our direct costs of recovering the goods if you do not return the goods or return them at our expense.

Once you have notified us that you wish to cancel the contract, any sum debited to us will be refunded to you as soon as possible and in any event within 30 days of your cancellation.

You will not have any right to cancel a purchase for the supply of any of the following goods:

  • for the supply of goods the price of which is dependent on fluctuations in the financial market which cannot be controlled by the retailer
  • for the supply of good made to your specifications or clearly personalised or which by reason of their nature cannot be returned or are liable to deteriorate or expire rapidly
  • for the supply of audio or video recordings or computer software if they are unsealed by you
  • for the supply of any digital downloads
  • for the supply of newspapers, periodicals or magazines
  • for gaming, betting or lottery services


All confidential information is held securely. We do not hold your credit card details as we use PayPal as our payment gateway and such information is not shared with us.


You agree to indemnify Pseudomyxoma Survivor, its officers, servants and agents against any claims, losses, liabilities, damages and expenses (including legal fees), arising out of your use of this site.


The Contract will be governed by the laws of England and Wales and the parties to the Contract submit to the jurisdiction of the English Courts.


All notices you send us must be sent to the appropriate contact details on this site. We may give notice to you at either the email or postal address you provide to us when making a purchase. (Notice will be deemed received and properly served 24 hours after an email is sent or three days after the date of posting of any letter). In providing the service of any notice, it will be sufficient to prove, in the case of a letter, that the letter was properly addressed, stamped and placed in the post and, in the case of an email that the email was sent to the specified email address of the addressees.

Consumer Rights

None of the above Terms and Conditions affects your statutory consumer rights.



These terms are governed by English law. Any contract for the purchase of goods from this site and any dispute or claim arising out of or in connection with any such contract will be governed by English law. You and we both agree that the courts of England and Wales will have non-exclusive jurisdiction. However, if you are a resident in Northern Ireland you may also bring proceedings in Northern Ireland, and if you are a resident in Scotland you may also bring proceedings in Scotland.

Donating by text

If you are based in the UK, just text RARE01 and the amount to 70070. For example, if you wanted to donate £10, you’d text:

‘RARE01 £10’ and send to the number 70070.

You can donate £1, £2, £3, £4, £5 or £10 by text, for any other amount you’ll need to give online.

Within 24 hours you’ll receive confirmation by text to let you know the donation has been successful.

What’s the cost of donating by text?

Every penny of your donation (including Gift Aid) goes to Pseudomyxoma Survivor. You may be charged for your text message, please refer to your network operator’s standard rates.

Can I add Gift Aid, my name and a message to a text donation?

Yes, once you’ve sent your text, you will receive a reply from JustGiving, our GiftAid agent, to confirm that it’s been received. The reply will also include a link to an online form. If you have a smartphone, click on the link to claim Gift Aid and/or leave a message. Alternatively, you can copy the link into a web browser on your PC/laptop or tablet and fill the form in there.

How can I get a refund for a text donation?

As text donations are charged to your mobile phone bill or taken from your pay as you go credit, you’ll need to contact your mobile phone provider directly to arrange a refund.

Our text donation service is provided by JustGiving. For further information, please visit the JustGiving website, http://www.justgiving.com.




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