Pseudomyxoma Survivor provides a support network for those affected by pseudomyxoma peritonei (PMP) and appendix cancers. We do this through many ways including our website, our support group, our 1:1 buddy system, family grant scheme, raising awareness and keeping our community involved in the developments in pseudomyxoma peritonei (PMP) and appendix cancer, rare cancers and rare diseases.
We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide this important work. We’re especially interested in hearing from people with:
- direct experience of PMP or appendix cancer as a patient or a caregiver
- marketing experience
- an interest in rare cancers and rare diseases more generally
- an understanding of the issues faced by a small charity
- an ability to work well as part of a diverse team of trustees and in support of our Executive Team
- excellent communication skills with an instinct to listen first, to be able to challenge supportively and to build consensus
- an understanding and acceptance of the legal duties, liabilities and responsibilities of trustees and clarity on the difference between governance functions and management functions
Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. We meet at least once a year face to face (online or in person) with subgroup meetings throughout the year as required. We are also looking for Trustees who are willing to become more involved with the work of Pseudomyxoma Survivor outside of Board meetings and support with day to day volunteering. We pay travel expenses; the role of Trustee is unpaid.
Joining the charity Pseudomyxoma Survivor five years ago as Chair has been a great privilege and I have learnt so much. As a ‘Survivor’ myself, this has been a way for me to share my experiences to help others and in a small way to give something back. Peer support is so important to patients, I personally did not speak to someone with the same cancer as me for the first 10 years of my diagnosis and wished that I could have. The drive and determination of the charity’s founder was to rectify this and this initial aim remains a priority going forward, people need to know they are not alone. As a Trustee I have learnt the importance of good governance and ensuring the charity not only meets its goals but runs as efficiently as possible. We get to set the future strategy of the charity and put our own stamp on the direction it will take. Deciding how the funds will be spent and the difference we can make to others is what I enjoy the most. Being a Trustee is so rewarding I can recommend it.