Pseudomyxoma Survivor provides a support network for those affected by pseudomyxoma peritonei (PMP) and appendix cancers. We do this through many ways including our website, our support group, our 1:1 buddy system, family grant scheme, raising awareness and keeping our community involved in the developments in pseudomyxoma peritonei (PMP) and appendix cancer, rare cancers and rare diseases.
We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide this important work. We’re especially interested in hearing from people with:
- direct experience of PMP or appendix cancer as a patient or a caregiver
- marketing experience
- an interest in rare cancers and rare diseases more generally
- an understanding of the issues faced by a small charity
- an ability to work well as part of a diverse team of trustees and in support of our Executive Team
- excellent communication skills with an instinct to listen first, to be able to challenge supportively and to build consensus
- an understanding and acceptance of the legal duties, liabilities and responsibilities of trustees and clarity on the difference between governance functions and management functions
Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. We meet at least once a year face to face (online or in person) with subgroup meetings throughout the year as required. We are also looking for Trustees who are willing to become more involved with the work of Pseudomyxoma Survivor outside of Board meetings and support with day to day volunteering. We pay travel expenses; the role of Trustee is unpaid.
I joined Pseudomyxoma Survivor as a Trustee eighteen months ago. A good friend of mine is a ‘survivor’ and I knew how much difference the charity had made to her life and I was happy to support them with some of my time. Not being a patient myself, I think I have brought a different perspective to the group and I have really enjoyed helping out behind the scenes and feeling a part of something that really makes a difference to peoples lives, just when they need it most. I am a firm believer in supporting and enabling medical science and it has been great to be able to encourage the fund raising efforts in order that we can support research programmes into the disease. The amount of time I give to the charity is very flexible and it works around my full time role at the University of Leeds. I can definitely recommend being a Trustee of Pseudomyxoma Survivor as it is a great organisation to work with.