I just re-found this article¹ and while it isn’t specifically about pseudomyxoma peritonei (PMP) or appendix cancer, it is very relevant to everyone diagnosed with any cancer and I remember reading it and that it helped me with where my diagnosis (and two reocurrences) put me and those around me. I thought it might be worth sharing for those currently facing their own journey…
Jeff Tomczek is a freelance writer and the founder of C2Bseen, offering consulting services to niche brands and entrepreneurs. He was diagnosed with leukemia at the age of 27 and at 28, was told he had no trace of the disease in his body.
You really should read the article in full, here’s a summary:
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Your relationships are about to change
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You will be determined to have more energy than you do
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You are going to feel fear
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The people that love you will be just as scared as you are
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The sooner you recognize that you are mortal, the sooner you can create the mentality for survival
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Your doctors and nurses will become your source of comfort
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You will need to find balance after treatment
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You will inspire others. It will feel weird
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When you get to the other side you won’t believe it
What do you wish you’d been told when you were first diagnosed?
Accessed March 20th, 2021.
I was actually told not to read about the condition or surgery beforehand and I’m glad I didn’t.. Had a wonderful surgeon .. I just wish more was said to me about the recovery.
Barbara
Perhaps if you had found our website or our support group earlier you would have been able to learn more and ask those questions of your patient peers! So glad you had a wonderful surgeon, we hope that every patient will one day have such access.
I googled all about Pseudomyxoma Peritonei as soon as I was diagnosed. I found Pseudomyxoma Survivor which I am so thankful for. The friends I have found and lost on the site know exactly how I feel. I think we are all different but I need to know all about our cancer. Knowledge is power it helps you make decisions and there are no nasty surprises.
Thank you, Susan