EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
Eurordis
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My Pseudomyxoma Peritonei (PMP) Experience
Louise’s story of living with a rare cancer called Pseudomyxoma Peritonei (PMP).
Cancer 52
Cancer52 represents 80 predominantly small cancer charities united by their vision of seeing a better future for everyone affected by the rare and less common cancers, which account for more than half of all cancer deaths in the UK.
http://www.cancer52.org.uk/
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