In the News
Keep in touch with what is going on at Pseudomyxoma Survivor
A day for remembering
Audrey Hepburn believed that ‘As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others’ and this is the ethos of Pseudomyxoma Survivor.
I was shocked by my pseudomyxoma peritonei diagnosis
Being diagnosed with pseudomyxoma peritonei (or PMP) came as a huge shock. It was discovered accidentally as my usual yearly bloods showed abnormalities. My GP suggested an ultrasound because my kidney numbers were slightly down.
Don’t let a cancer diagnosis mean waiting and delaying become habits
Following a major operation in September to remove my left ovary, a cyst, my appendix and litres of mucinous jelly from my abdomen, in November I received the horrible news that I definitely had cancer. We didn’t know which cancer, whether it was mucinous ovarian cancer or pseudomyxoma peritonei (or PMP). I was told we could wait several months for a final diagnosis.
In sickness and in health
On the 4th May 1974, we married in the beautiful Christchurch Priory which was then Hampshire and is now Dorset, to have and to hold from this day forward. I didn’t realise how important the words in our vows “in sickness and in health” were at the time.
I feel so lucky for family love and care
In 2021, in the midst of the Covid-19 pandemic, I had cytoreductive surgery and HIPEC at the Basingstoke and North Hampshire hospital.
Can we stop tumour growth in PMP?
Faheez Mohammed from the Peritoneal Malignancy Institute in Basingstoke explains the preliminary results of the GNAS trial and what it could mean for patients.
Meet trustee Clare
I became a trustee for Pseudomyxoma Survivor this year. I really wanted to do something positive after being diagnosed with a recurrence in 2020.
Meet Alison, one of our trustees
It’s Trustees’ Week from 1st-5th November 2021 and we’re hoping to give you an idea what it’s like to be a trustee with Pseudomyxoma Survivor. Alison shares her experiences of becoming a trustee with Pseudomyxoma Survivor
Trustee Week – have you got what it takes?
It’s important for us to have a diverse range of skills on our trustee board. Having different approaches, skills and experience on a board helps Pseudomyxoma Survivor carry out our important work to the high standards that our donors and the public expect.
Breaking the Taboo Around Cancer and Sexuality
Those of us that have been treated for pseudomyxoma peritonei (PMP) and appendix cancers can have many physical and emotional hurdles to overcome. This is why I believe it’s such an important topic for discussion.
I found out I had an appendix tumour during my c-section
Oh, there’s an issue with your appendix. We’ll need to get another surgeon across to remove your appendix. There seems to be a tumour-like growth on your appendix and there is mucous leaking around your abdomen.”
A grant from Pseudomyxoma Survivor helped me
I am so grateful for the grant from Pseudomyxoma Survivor which I received. It has helped me financially during such a difficult time.
Our Cancer Cash Story
Critical illness was something my mum never had when she had her heart attack at 37 years old and this was another driving factor for us taking out both critical illness and life cover.
Georgina
It is with a heavy heart that we announce that our friend and colleague, Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years.
Pressurized intraperitoneal aerosol chemotherapy (PIPAC): a novel treatment for patients with PMP in whom extensive surgery is not possible
In patients diagnosed with pseudomyxoma peritonei (PMP), extensive surgical removal of all visible disease (‘debulking’) combined with instillation of heated chemotherapy in the peritoneal cavity (HIPEC) offers the best chance of cure. However, in some patients,...
Dr Jason Spendelow
Supporting our commitment to living with pseudomyxoma peritonei and appendix cancer, we welcome Dr Spendelow as a medical advisor.
Expansion Exercise with Dr Jason Spendelow
You don’t have to be like or want feelings; you just make room for them and allow them to be there, even if they’re uncomfortable.
Jamie’s Gift Lists – Hospital
I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a cancer patient but they really want to find a way to help. Some gifts may not feel like gifts but really are very useful. I always appreciate useful.
Coronavirus Vaccines
Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination.
BromAc trial in Spain
Dr Arona Sanchez from Cordoba tells us about an exciting new trial for patients experiencing a recurrence of PMP.
Photo credit: Hellerhoff, CC BY-SA 3.0, via Wikimedia Commons
We’re looking for trustees!
We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide our important work. Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. Is this you?
Your sexual health after treatment
Sexual dysfunction was identified in 87% of respondents in a survey of cancer survivors.
Extending our emotional support programme
Announcing our workshops which are intended to be quite practical and interactive, so people will be encouraged to participate and ask questions where they feel comfortable.
Second wave survey
Cancer52 has launched a survey to understand how the second wave of the coronavirus pandemic is impacting our community.
The Gifting Season continues
All ready for tomorrow’s trip to the Christie. A little something for each of the staff that help to look after Pseudomyxoma Survivors.
The Gifting Season is Underway…
Our first box of Christmas goodies is going out tomorrow – our way of saying “thank you” to the amazing hospital consultants and staff that have helped look after pseudomyxoma survivors on the wards.
An After Dinner Chat With…
Join Nils Blythe for a series of after dinner talks with people you’ll want to listen to, all from the comfrot of your own home.
Can you help us raise awareness of pseudomyxoma peritonei and appendix cancers?
This is a great opportunity to gain experience in a very small charity and develop your existing skills and learn new ones.
I’m now on ‘watch and wait’ following a diagnosis of pseudomyxoma peritonei
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’.
The Biology of pseudomyxoma peritonei (PMP)
Pseudomyxoma Survivor is supporting exciting new research into the biology of pseudomyxoma peritonei.
Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.
As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.