In the News

Keep in touch with what is going on at Pseudomyxoma Survivor

Georgina

Georgina

It is with a heavy heart that we announce that our friend and colleague, Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years.

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Dr Jason Spendelow

Dr Jason Spendelow

Supporting our commitment to living with pseudomyxoma peritonei and appendix cancer, we welcome Dr Spendelow as a medical advisor.

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Jamie’s Gift Lists – Hospital

Jamie’s Gift Lists – Hospital

I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a cancer patient but they really want to find a way to help. Some gifts may not feel like gifts but really are very useful. I always appreciate useful.

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Coronavirus Vaccines

Coronavirus Vaccines

Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination.

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BromAc trial in Spain

BromAc trial in Spain

Dr Arona Sanchez from Cordoba tells us about an exciting new trial for patients experiencing a recurrence of PMP.
Photo credit: Hellerhoff, CC BY-SA 3.0, via Wikimedia Commons

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We’re looking for trustees!

We’re looking for trustees!

We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide our important work. Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. Is this you?

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Second wave survey

Second wave survey

Cancer52 has launched a survey to understand how the second wave of the coronavirus pandemic is impacting our community.

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The Gifting Season continues

The Gifting Season continues

All ready for tomorrow’s trip to the Christie. A little something for each of the staff that help to look after Pseudomyxoma Survivors.

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The Gifting Season is Underway…

The Gifting Season is Underway…

Our first box of Christmas goodies is going out tomorrow – our way of saying “thank you” to the amazing hospital consultants and staff that have helped look after pseudomyxoma survivors on the wards.

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Virtual Kiltwalk 2020

Virtual Kiltwalk 2020

2020 is a really difficult year for UK charities and Pseudomyxoma Survivor is no exception. With lockdown and social distancing, the opportunities for fundraising have become severely limited. This is why we're so excited to share this news form The Kiltwalk with you....

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#helpushelpyou

#helpushelpyou

The current climate has presented us with many issues and one of the greatest concerns is not many of us have visited a hospital for care during the COVID-19 pandemic.

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Coronavirus Covid-19 information

Coronavirus Covid-19 information

Coronaviruses have been known for many centuries and in fact, the common cold is a coronavirus. The type of coronavirus in the news right now is the 2019 Novel Coronavirus, SARS-CoV-2.

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Dead Man to Iron Man

Dead Man to Iron Man

As I came to terms with the news, I understood that it would be important for me to get as fit as I could to face such an invasive operation ominously dubbed the “The Mother of all Surgeries” or MOAS.

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Shining a light on our volunteers – Susie

Shining a light on our volunteers – Susie

I was more than happy to become a volunteer admin, remembering how important I found the reassurance of the woman I spoke to before my surgery and the help and support I received from the group after it.

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Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.

As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

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We hope our blog has inspired you and perhaps you have a story to share – let us know if it has. You can leave a comment on a story or you can contact us with yours.