In the News

Keep in touch with what is going on at Pseudomyxoma Survivor

Dr Aditi Bhatt

Dr Aditi Bhatt

Aditi Bhatt is an Indian surgical oncologist who specializes in the
management of primary peritoneal malignancies and secondary peritoneal metastases of gastrointestinal and gynecological origin.

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A day for remembering

A day for remembering

Audrey Hepburn believed that ‘As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others’ and this is the ethos of Pseudomyxoma Survivor.

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I was shocked by my pseudomyxoma peritonei diagnosis

I was shocked by my pseudomyxoma peritonei diagnosis

Being diagnosed with pseudomyxoma peritonei (or PMP) came as a huge shock. It was discovered accidentally as my usual yearly bloods showed abnormalities. My GP suggested an ultrasound because my kidney numbers were slightly down.

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Don’t let a cancer diagnosis mean waiting and delaying become habits

Don’t let a cancer diagnosis mean waiting and delaying become habits

Following a major operation in September to remove my left ovary, a cyst, my appendix and litres of mucinous jelly from my abdomen, in November I received the horrible news that I definitely had cancer. We didn’t know which cancer, whether it was mucinous ovarian cancer or pseudomyxoma peritonei (or PMP). I was told we could wait several months for a final diagnosis.

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In sickness and in health

In sickness and in health

On the 4th May 1974, we married in the beautiful Christchurch Priory which was then Hampshire and is now Dorset, to have and to hold from this day forward. I didn’t realise how important the words in our vows “in sickness and in health” were at the time.

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Can we stop tumour growth in PMP?

Can we stop tumour growth in PMP?

Faheez Mohammed from the Peritoneal Malignancy Institute in Basingstoke explains the preliminary results of the GNAS trial and what it could mean for patients.

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Meet trustee Clare

Meet trustee Clare

I became a trustee for Pseudomyxoma Survivor this year. I really wanted to do something positive after being diagnosed with a recurrence in 2020.

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Meet Alison, one of our trustees

Meet Alison, one of our trustees

It’s Trustees’ Week from 1st-5th November 2021 and we’re hoping to give you an idea what it’s like to be a trustee with Pseudomyxoma Survivor. Alison shares her experiences of becoming a trustee with Pseudomyxoma Survivor

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Trustee Week – have you got what it takes?

Trustee Week – have you got what it takes?

It’s important for us to have a diverse range of skills on our trustee board. Having different approaches, skills and experience on a board helps Pseudomyxoma Survivor carry out our important work to the high standards that our donors and the public expect.

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Breaking the Taboo Around Cancer and Sexuality

Breaking the Taboo Around Cancer and Sexuality

Those of us that have been treated for pseudomyxoma peritonei (PMP) and appendix cancers can have many physical and emotional hurdles to overcome. This is why I believe it’s such an important topic for discussion.

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Our Cancer Cash Story

Our Cancer Cash Story

Critical illness was something my mum never had when she had her heart attack at 37 years old and this was another driving factor for us taking out both critical illness and life cover.

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Georgina

Georgina

It is with a heavy heart that we announce that our friend and colleague, Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years.

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Dr Jason Spendelow

Dr Jason Spendelow

Supporting our commitment to living with pseudomyxoma peritonei and appendix cancer, we welcome Dr Spendelow as a medical advisor.

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Jamie’s Gift Lists – Hospital

Jamie’s Gift Lists – Hospital

I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a cancer patient but they really want to find a way to help. Some gifts may not feel like gifts but really are very useful. I always appreciate useful.

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Coronavirus Vaccines

Coronavirus Vaccines

Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination.

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BromAc trial in Spain

BromAc trial in Spain

Dr Arona Sanchez from Cordoba tells us about an exciting new trial for patients experiencing a recurrence of PMP.
Photo credit: Hellerhoff, CC BY-SA 3.0, via Wikimedia Commons

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We’re looking for trustees!

We’re looking for trustees!

We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide our important work. Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. Is this you?

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Second wave survey

Second wave survey

Cancer52 has launched a survey to understand how the second wave of the coronavirus pandemic is impacting our community.

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The Gifting Season continues

The Gifting Season continues

All ready for tomorrow’s trip to the Christie. A little something for each of the staff that help to look after Pseudomyxoma Survivors.

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The Gifting Season is Underway…

The Gifting Season is Underway…

Our first box of Christmas goodies is going out tomorrow – our way of saying “thank you” to the amazing hospital consultants and staff that have helped look after pseudomyxoma survivors on the wards.

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Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.

As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

Feeling inspired?

We hope our blog has inspired you and perhaps you have a story to share – let us know if it has. You can leave a comment on a story or you can contact us with yours.