News

Keep in touch with what is going on at Pseudomyxoma Survivor.
Coronavirus Covid-19 information

Coronavirus Covid-19 information

Coronaviruses have been known for many centuries and in fact, the common cold is a coronavirus. The type of coronavirus in the news right now is the 2019 Novel Coronavirus, SARS-CoV-2.

read more
Dead Man to Iron Man

Dead Man to Iron Man

As I came to terms with the news, I understood that it would be important for me to get as fit as I could to face such an invasive operation ominously dubbed the “The Mother of all Surgeries” or MOAS.

read more
Shining a light on our volunteers – Susie

Shining a light on our volunteers – Susie

I was more than happy to become a volunteer admin, remembering how important I found the reassurance of the woman I spoke to before my surgery and the help and support I received from the group after it.

read more
Lockdown Life

Lockdown Life

Hope will always be a choice, and for me one made pragmatically I suppose — made for the purpose of survival of the soul as much as of the body. I can’t live in fear.

read more
Our next update

Our next update

We hope you’ve been keeping safe and healthy during lockdown. Lockdown has gone on for weeks but at least the sunshine here in the UK has made everything feel better.

read more
Biweekly Update on PMP 3

Biweekly Update on PMP 3

We hope you’ve been keeping safe and healthy during lockdown. Lockdown has gone on for weeks but at least the sunshine here in the UK has made everything feel better.

read more
Does cannabis treat cancer?

Does cannabis treat cancer?

Jamie Murphy, Consultant Surgeon in Peritoneal (HIPEC/PIPAC) & Pelvic Oncology ay Imperial College London discusses the evidence for the benefits of cannabis in treating cancers.

read more
Biweekly Insight on PMP 2

Biweekly Insight on PMP 2

We hope you’ve been keeping well in lockdown. This is a difficult time for everyone, especially for those of us living with or affected by pseudomyxoma peritonei and other cancers of the appendix. Our online community and Buddies system continue to provide forums of support and understanding, and we hope to see everyone there.

read more
Update for Splenectomy patients in the UK

Update for Splenectomy patients in the UK

Yesterday it was announced by NHS England and NHS Digital that Splenectomy patients should be formally included on the Shielded Patient List, as they are considered extremely vulnerable.

read more
Biweekly insight on PMP

Biweekly insight on PMP

Given the difficult situation we find ourselves in, we wanted to ensure that everyone in our community receives the extra support they need from us. That’s why we have decided to launch a new initiative to send you more regular updates on topics which you may find of interest.

read more
Advice from the Royal Pharmaceutical Society

Advice from the Royal Pharmaceutical Society

Community pharmacists and their teams are doing their best during these difficult times to make sure that everyone gets the medicines they need. We have today received advice from the Royal Pharmaceutical Society to help them to help you

read more
A Joint message from the PMI and CPOC

A Joint message from the PMI and CPOC

Here at Pseudomyxoma Survivor, we are doing as much as we can to support us all in the current climate.

As patients ourselves, we were concerned that treatment and monitoring may be affected as our specialists are supporting COVID-19 patients.

read more
London Landmarks Half Marathon LLHM 2020 Update

London Landmarks Half Marathon LLHM 2020 Update

We have a fantastic team of runners who have all been training hard for the London Landmarks Half Marathon in order to raise funds for Pseudomyxoma Survivor. Due to the current risks around Coronavirus, our runners have found an imaginative alternative.

read more
EuroPMP International Workshop on pseudomyxoma peritonei

EuroPMP International Workshop on pseudomyxoma peritonei

In December, Susan and Angela have been asked to present at the EuroPMP International Workshop on pseudomyxoma peritonei. It is a privilege to be asked to present to this network of experts from many fields, including surgeons, pathologists, oncologists, radiologists, molecular biologists, bioinformaticians and allied health care professionals of which Angela is a participant.

read more
NHS Standard Contract for 2020/21

NHS Standard Contract for 2020/21

Pseudomyxoma Survivor welcomes the introduction of the Faster Diagnosis Standard which will ensure that all patients who are referred urgently for the investigation of suspected cancer by their GP or a screening programme find out, within 28 days, if they do or do not have a cancer diagnosis. This standard will be introduced in April 2020.

read more
Share your story and leave us a review!

Share your story and leave us a review!

You have an opportunity to help us make even more of a difference in our community. GreatNonprofits —a review site like TripAdvisor— will be honouring highly reviewed nonprofits with their 2020 Top-Rated Awards.

read more
Coping with your disease

Coping with your disease

We're looking at different aspects of our service and where we should focus. As part of that, we are looking at a series of questions and we'd like your help. Our first question for you is Has being a member of our online support group or the PMP RareConnect group...

read more
Rare Disease Day 2020

Rare Disease Day 2020

Rare Disease Day is the official international awareness-raising campaign for rare diseases. Rare Disease Day takes place on the last day of
February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare
diseases and their impact on patients’ lives.

read more

 

Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.

As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

Feeling inspired?

We hope our blog has inspired you and perhaps you have a story to share – let us know if it has. You can leave a comment on a story or you can contact us with yours.