In the News
Keep in touch with what is going on at Pseudomyxoma Survivor
My overnight hospital stay eventually turned out to be 17 nights!
I was informed that I had pseudomyxoma perintonei (the nurse had to write it down for me) and they were referring me to The Christie specialist cancer hospital in Manchester.
What are the statistics for pseudomyxoma peritonei?
It’s estimated that 1 in 2 people in the UK born after 1960 will be diagnosed with some form of cancer during their lifetime. What numbers are there for pseudomyxoma peritonei (PMP)?
Only 3 or 4 people per year are diagnosed with pseudomyxoma peritonei
Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.
Donate your used printer cartridges
We’re registered with Recycle 4 Charity who will make us a donation for your empty printer ink cartridges.
What to pack for your hospital stay
One of the questions we get asked a lot and features heavily in our support groups is “What do I need to bring into hospital with me?”.
What surgery is called the mother of all surgeries?
Treating pseudomyxoma peritonei and appendix cancers can be challenging.
World Cancer Day
February 4th marks World Cancer Day, the one day in the year when the world comes together to raise awareness of cancer and also to encourage its prevention, detection and treatment.
New Year, New Trustee
We’re starting off 2023 with a new trustee. Please join us in welcoming Tim to our board of trustees. He brings a wealth of knowledge and experience that will add value and strength to the team.
Dr Aditi Bhatt
Aditi Bhatt is an Indian surgical oncologist who specializes in the
management of primary peritoneal malignancies and secondary peritoneal metastases of gastrointestinal and gynecological origin.
A day for remembering
Audrey Hepburn believed that ‘As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others’ and this is the ethos of Pseudomyxoma Survivor.
I was shocked by my pseudomyxoma peritonei diagnosis
Being diagnosed with pseudomyxoma peritonei (or PMP) came as a huge shock. It was discovered accidentally as my usual yearly bloods showed abnormalities. My GP suggested an ultrasound because my kidney numbers were slightly down.
Don’t let a cancer diagnosis mean waiting and delaying become habits
Following a major operation in September to remove my left ovary, a cyst, my appendix and litres of mucinous jelly from my abdomen, in November I received the horrible news that I definitely had cancer. We didn’t know which cancer, whether it was mucinous ovarian cancer or pseudomyxoma peritonei (or PMP). I was told we could wait several months for a final diagnosis.
In sickness and in health
On the 4th May 1974, we married in the beautiful Christchurch Priory which was then Hampshire and is now Dorset, to have and to hold from this day forward. I didn’t realise how important the words in our vows “in sickness and in health” were at the time.
I feel so lucky for family love and care
In 2021, in the midst of the Covid-19 pandemic, I had cytoreductive surgery and HIPEC at the Basingstoke and North Hampshire hospital.
Can we stop tumour growth in PMP?
Faheez Mohammed from the Peritoneal Malignancy Institute in Basingstoke explains the preliminary results of the GNAS trial and what it could mean for patients.
Meet trustee Clare
I became a trustee for Pseudomyxoma Survivor this year. I really wanted to do something positive after being diagnosed with a recurrence in 2020.
Meet Alison, one of our trustees
It’s Trustees’ Week from 1st-5th November 2021 and we’re hoping to give you an idea what it’s like to be a trustee with Pseudomyxoma Survivor. Alison shares her experiences of becoming a trustee with Pseudomyxoma Survivor
Trustee Week – have you got what it takes?
It’s important for us to have a diverse range of skills on our trustee board. Having different approaches, skills and experience on a board helps Pseudomyxoma Survivor carry out our important work to the high standards that our donors and the public expect.
Breaking the Taboo Around Cancer and Sexuality
Those of us that have been treated for pseudomyxoma peritonei (PMP) and appendix cancers can have many physical and emotional hurdles to overcome. This is why I believe it’s such an important topic for discussion.
I found out I had an appendix tumour during my c-section
Oh, there’s an issue with your appendix. We’ll need to get another surgeon across to remove your appendix. There seems to be a tumour-like growth on your appendix and there is mucous leaking around your abdomen.”
A grant from Pseudomyxoma Survivor helped me
I am so grateful for the grant from Pseudomyxoma Survivor which I received. It has helped me financially during such a difficult time.
Our Cancer Cash Story
Critical illness was something my mum never had when she had her heart attack at 37 years old and this was another driving factor for us taking out both critical illness and life cover.
Georgina
It is with a heavy heart that we announce that our friend and colleague, Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years.
Pressurized intraperitoneal aerosol chemotherapy (PIPAC): a novel treatment for patients with PMP in whom extensive surgery is not possible
In patients diagnosed with pseudomyxoma peritonei (PMP), extensive surgical removal of all visible disease (‘debulking’) combined with instillation of heated chemotherapy in the peritoneal cavity (HIPEC) offers the best chance of cure. However, in some patients,...
Dr Jason Spendelow
Supporting our commitment to living with pseudomyxoma peritonei and appendix cancer, we welcome Dr Spendelow as a medical advisor.
Expansion Exercise with Dr Jason Spendelow
You don’t have to be like or want feelings; you just make room for them and allow them to be there, even if they’re uncomfortable.
Jamie’s Gift Lists – Hospital
I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a cancer patient but they really want to find a way to help. Some gifts may not feel like gifts but really are very useful. I always appreciate useful.
Coronavirus Vaccines
Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination.
BromAc trial in Spain
Dr Arona Sanchez from Cordoba tells us about an exciting new trial for patients experiencing a recurrence of PMP.
Photo credit: Hellerhoff, CC BY-SA 3.0, via Wikimedia Commons
We’re looking for trustees!
We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide our important work. Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. Is this you?
Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.
As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.