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1. Disclaimer

The content on our site does not constitute advice on which you should rely. It is provided for general information purposes only.  Professional or specialist advice should always be sought before taking any action relating to medical treatment and monitoring.

The information on our site is not designed with commercial purposes in mind. We make no representation or warranty that the content of our site is suitable for use in commercial situations or that it constitutes accurate data and/or advice on which business decisions can be based.

Insofar as is permitted by law, we make no representation, warranty, or guarantee that our site will meet your requirements, that it will not infringe the rights of third parties, that it will be compatible with all software and hardware, or that it will be secure. If, as a result of our failure to exercise reasonable care and skill, any digital content from our site damages your device or other digital content belonging to you, if you are a consumer you may be entitled to certain legal remedies.  For more details concerning your rights and remedies as a consumer, please contact your local Citizens Advice Bureau, Trading Standards Office or local equivalent.

We make reasonable efforts to ensure that the content on our site is complete, accurate, and up-to-date. We do not, however, make any representations, warranties or guarantees (whether express or implied) that the content is complete, accurate, or up-to-date.


2. Information About Us

2.1 Our site is owned and operated by Pseudomyxomasurvivor, a charity registered in England and Wales under charity number 1143642, whose registered address is as 9 Ilmington Close, Hatton Park, Warwick, CV35 7TL.

2.2 We are regulated We are regulated by the Charity Commission of England and Wales, the ICO (under ZA308120) and the Fundraising Regulator.

2.3 We are a member of Cancer52, CORD, European Cancer Patient Coalition, EURORDIS, Foundation for Social Improvement (FSI), National Voices, NCVO, Rare Disease UK, Rare Voices Australia and Small Charities Coalition.

Updated: 1st February 2023

Pseudomyxoma Survivor