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At Pseudomyxoma Survivor, we’re committed to ensuring and protecting your privacy at any time. We expect anyone involved with Pseudomyxoma Survivor to do the same.

This website uses cookies and similar technologies in order to distinguish you from other users. By using cookies, we’re able to provide you with a better experience and to improve our site by better understanding how you use it. Please read this cookie policy carefully and ensure that you understand it. Your acceptance of our cookie policy is deemed to occur when you press the “Accept” button on our cookie pop-up or when you have selected your preferred cookie options in the pop-up and pressed the “Save and Continue” button. If you do not agree to our cookie policy, please stop using our site immediately.

In this cookie policy, unless the context otherwise requires, the following expressions have the following meanings


means a small file placed on your computer or device by Our Site when you visit certain parts of Our Site and/or when you use certain features of Our Site;

“Cookie Law”

means the relevant parts of the Privacy and Electronic Communications (EC Directive) Regulations 2003;

“personal data”

means any and all data that relates to an identifiable person who can be directly or indirectly identified from that data, as defined by the Data Protection Act 2018; and


means Pseudomyxomasurvivor, a charity registered in England and Wales under charity number 1143642, whose registered address is 9 Ilmington Close, Hatton Park, Warwick, CV35 7TL.


Information About Us

Our site is owned and operated by Pseudomyxomasurvivor, a limited charity registered in England and Wales under charity number 1143642, whose registered address is as above.

Our Data Protection Officer is A Brook, who can be contacted by email at [email protected] or by post at the address shown above.

We are regulated We are regulated by the Charity Commission of England and Wales, the ICO (under ZA308120) and the Fundraising Regulator.

We are a member of Cancer52, CORD, European Cancer Patient Coalition, EURORDIS, Foundation for Social Improvement (FSI), National Voices, NCVO, Rare Disease UK, Rare Voices Australia and Small Charities Coalition.

How Does Our Site Use Cookies?

  • Our Site may place and access certain first party cookies on your computer or device. First party cookies are those placed directly by us and are used only by us. We use cookies to facilitate and improve your experience of our site and to provide and improve our services. We have carefully chosen these cookies and have taken steps to ensure that your privacy and personal data is protected and respected at all times.
  • By using our site, you may also receive certain third party cookies on your computer or device. Third party cookies are those placed by websites, services, and/or parties other than us. For more details, please refer to the policy below.
  • All cookies used by and on our Site are used in accordance with current cookie law. We may use some or all of the following types of cookie:

Strictly Necessary Cookies

A Cookie falls into this category if it is essential to the operation of our site, supporting functions such as logging in, your shopping basket, and payment transactions.

Analytics Cookies

It is important for us to understand how you use our site, for example, how efficiently you are able to navigate around it, and what features you use. Analytics cookies enable us to gather this information, helping us to improve our site and your experience of it.

Functionality Cookies

Functionality cookies enable us to provide additional functions to you on Our Site such as personalisation and remembering your saved preferences. Some functionality cookies may also be strictly necessary cookies, but not all necessarily fall into that category.

Targeting Cookies

It is important for us to know when and how often you visit our site, and which parts of it you have used (including which pages you have visited and which links you have visited). As with analytics cookies, this information helps us to better understand you and, in turn, to make our site and to improve the efectiveness of our advertising as well asmore relevant to your interests. Some information gathered by targeting Cookies may also be shared with third parties.

Third Party Cookies

Third party cookies are not placed by us; instead, they are placed by third parties that provide services to us and/or to you. Third party cookies may be used by advertising services to serve up tailored advertising to you on our site, or by third parties providing analytics services to us (these cookies will work in the same way as analytics Cookies described above).

Persistent Cookies

Any of the above types of Cookie may be a persistent cookie. Persistent cookies are those which remain on your computer or device for a predetermined period and are activated each time you visit our site.

Session Cookies

Any of the above types of cookie may be a session cookie. Session cookies are temporary and only remain on your computer or device from the point at which you visit our site until you close your browser. Session cookies are deleted when you close your browser.

  • Cookies on Our Site are not permanent and will expire as indicated below.
  • For more details of the personal data that we collect and use, the measures we have in place to protect personal data, your legal rights, and our legal obligations, please refer to our privacy policy.
  • For more specific details of the cookies that we use, please refer to the policy below.

Consent and Control

Before cookies are placed on your computer or device, you will be shown a pop-up requesting your consent to set those cookies. By giving your consent to the placing of cookies you are enabling us to provide the best possible experience and service to you. You may, if you wish, deny consent to the placing of cookies unless those cookies are strictly necessary; however certain features of our site may not function fully or as intended. You will be given the opportunity to allow and/or deny different categories of cookie that we use.

In addition to the controls that We provide, you can choose to enable or disable cookies in your internet browser. Most internet browsers also enable you to choose whether you wish to disable all cookies or only third party cookies. By default, most internet browsers accept cookies but this can be changed. For further details, please consult the help menu in your internet browser or the documentation that came with your device.

The links below provide instructions on how to control Cookies in all mainstream browsers:

Google Chrome: https://support.google.com/chrome/answer/95647?hl=en-GB

Microsoft Internet Explorer: https://support.microsoft.com/en-us/kb/278835

Microsoft Edge: https://support.microsoft.com/en-gb/products/microsoft-edge (Please note that there are no specific instructions at this time, but Microsoft support will be able to assist)

Safari (macOS):

Safari (iOS):

Mozilla Firefox:

https://support.google.com/chrome/answer/95647?co=GENIE.Platform%3DAndroid&hl=en (Please refer to your device’s documentation for manufacturers’ own browsers)

Changes to this Cookie Policy

We may alter this Cookie Policy at any time.  Any such changes will become binding on you on your first use of our site after the changes have been made.  You are therefore advised to check this page from time to time.

In the event of any conflict between the current version of this Cookie Policy and any previous version(s), the provisions current and in effect shall prevail unless it is expressly stated otherwise.

Cookie Policy

This policy is available in paper, by request in writing.


Written by: A Brook
Approved by: S Oliver

Review by 31 December 2024

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